Free Car for Disabled Adults

How You Get a Free Car – If You Have a Disability

When a person with a disability or a disabling medical condition needs a car, finding an affordable vehicle can be a challenge to say the least. Most of the time, having access to a car is not a luxury, it is a necessity.

Cities are generally easier for persons with disabilities to get around in depending on public transportation and its flexibility to accommodate wheelchairs.

When a disabled person lives in a more suburban area, public transportation usually boils down to buses and vans with ramps or lifts.

When a disabled person lives in a rural area your transportation diminish drastically. One’s being independent by having your own car is many times not just a personal choice but a necessity.

Where the Problems Start

The problem then becomes one of cost and that is unfortunately usually what people with a disability run into first. There is however an ever-increasing number of ways for a disabled person to get into their own vehicle. We must first start to think outside the box as to how to most successfully do this when there is already too much month left at the end of the money.

Even if you can’t find the FREE vehicle you want, there are many sources for grants or buy-downs by various companies (because they get a good write-off at tax time). Various government programs are also available.

The hard (but not impossible) work is generally in the search for a vehicle you need. The paperwork to become a legal owner of a donated vehicle can be anything from a single sheet of paper and title change to a tall stack of forms, usually from government offices. Fear Not! We have some plans you might be able to use.

Our Free Car Story

A few years ago, when our disabled son became too much for my wife or I to lift from the wheelchair to the car and then from the car to the wheelchair, it became evident that we had to do something different. My wife had broken her back, legs, and feet in a third-story fall so even though she has healed enough to walk, lifting that much was out of the question. I am just old with a bad back and arthritis.

We had a 10-year-old Camry that was about to give up the ghost anyway.

We were living on my social security and a small disability income so a new car (or in most cases even used vehicles) were not within our limited financial reach. After racking my brain on this situation, I got this idea of looking into any available programs, government or public based that might be able to help us out.

Choosing a Private Non-Profit Company

Within a week we were fortunate enough to find a private company in another state who purely as a charitable way to serve disabled people, had sources to vehicles that people wanted to donate and then get the tax break. The company just served as a go-between by getting the leads for the vehicles being donated and hooking the people donating vehicles up with people needing the vehicles. That way there was no profiting or liability to be concerned with.

Some generous folks close to us donated a 1996 GMC Savana 1500, customized travel van that already had a lift installed. I was a bit worried about the age of the van but when they brought the van to us it only had 29,000 miles and looked brand new! What an absolute blessing that was! I signed one document and the title, purchased new license plates, and we were on the road with doctor’s appointments, hospitals, specialists, movies, and our favorite hamburger place, pretty much like “normal” families. Here we are about 6 years later, and the van still only has about 45,000 miles on it and it runs like a top.

I want to point out that we were lucky. Things just worked out perfectly at every step. We also made some very good friends who we are still in touch with. This true story is here to point out that this idea of a free vehicle is not a pipe-dream but reality. It is one of those win-win situations where everyone involved gets blessed (and perhaps a nice tax write-off).

If we were to have to go through the process again, I would do it the same way. I would again look for people or organizations willing to donate a vehicle. You may spend substantial time searching the internet, but it is well worth it. We will provide you with links to various sources later in this article.

Government Free or Cost Assisted Programs

Governments like the U.S. or the UK, usually offer tax exemptions, loans or grants to help you get a vehicle and, if necessary, make modifications to it so that the vehicle will best fit your individual capabilities. In the U.S. there are also programs to help pay for vehicle

modifications through Federal and private insurance benefits. Search online for government funding opportunities and programs in your area to learn more about what’s available near you.

Veterans

If you are a veteran and your disability is the result of an injury while serving in any branch of the armed forces, there are government and private sources to get you behind the wheel you you can make all of those trips to the VA hospital.

Vehicle Information

If this is a charity, then they will want to gather information from you about the vehicle you are donating. Have the following information handy when you call:

  • Make of the vehicle
  • model
  • body type
  • vehicle identification number (VIN)
  • current mileage
  • condition
  • date last driven

Complete Required Paperwork

The paperwork you need will depend on your state. The safest way to make sure paperwork is complete is to contact your state’s Department of Motor Vehicles and check with them. In most states:

  • You will need the certificate of title to transfer the vehicle.
  • You will have to fill out the certificate of title in the name of the agency or individual that picks up vehicles for the charity. When a disabled person or are donating directly to an individual, that person should be there when the vehicle is picked up. Verify their identity and make sure they sign the title as the new owner.
  • Hopefully you are donating directly to the new owner. When a disabled person or are donating to a person or family, you will need their information on all the documents to transfer ownership directly to them.
  • You also must print and sign your name in the seller field on the certificate of title.
  • When a disabled person or are working with a charity, when the vehicle has been sold, you should receive an acknowledgment letter from the charity. Hold onto this letter. It contains information about the sale and can be used for tax deduction.
  • Instead, you might receive Form 1098-C from the charity.
  • You will also need to surrender your license plates. Each state has its own process for transferring ownership of a vehicle. Generally, you can keep your plates and use them with your new car. However, if you want to surrender them, then you can drop them off at your state’s Department of Motor Vehicles.
  • Each state has an approved form for the person donating the vehicle to complete that officially notifies the DMV of the sale of the vehicle. This helps prevent any liability of the person donating the vehicle.
  • If the donating person decides to sell the car outright and then donate the money to their favorite charity make sure that you get a receipt from the charity for the money donated to them. This should include the all the charity’s information and the amount given.

I would suggest that you copy all related documents for tax time as well.

Use a Well-Known Organization to Donate If You Have Any Doubts

There are several larger well-known organizations whose focus is giving vehicles to people who have a variety of needs, including those with disabilities. Groups like “Free Charity Cars” or “Ways to Work”, help applicants in need obtain reliable transportation. Register online to begin the process for yourself. Read more about an organization online at charitywatch.org or charitynavigator.org, for example, to find out more about individual groups before you work with them. Don’t forget the fees!

If you have any comments or questions please leave them in the Comment Section provided below. We answer EVERY question.

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Careful Planning – Saving Your Life in Disasters

NEWS FLASH!

Disabled People are the First to Die in Disasters! 

This Site Can Save Your Life!

We are Going to Show You How to Survive Disasters When Government is Unprepared to Help

People with a  disability have faced physical disasters since the beginning of their disability. It’s a long and difficult road to travel. I find that their inner strength grows just like our muscles grow with physical exercise.

The same growth happens for anyone whether they are able-bodied or disabled when even a minor disaster comes along. That is the exact reason why we have created this site to prepare you all by providing resources, information and direction to help people survive when disaster strikes. 

Sometimes just knowing who to talk to or where to find things can save lives. The realization that the government is not properly prepared to protect the disabled in any real disaster should be enough to motivate us into preparing to take care of themselves to the best of our ability. The directions we offer and the tools we recommend will make it that much more likely that you and/or your family will survive.

We all know just how frightening disasters like wildfires, floods, storms, and earthquakes can be. Horrible photos are thrown in front of us by the news media almost daily to keep the pain and suffering on our minds. You know the old saying,”if it bleeds, it reads”.

Now lets really scare ourselves by adding in the possibilities of things like war, terrorism, plane crashes, sink holes, mud slides, tsunamis, and a multitude of other disastrous things that can happen in minutes and can put our lives in peril. This is in truly a scary world that we live in.

The fear of the disasters is magnified without preparation. On the other hand, if we pay attention and properly prepare for a disaster, the fear is likely to subside as your knowledge grows.

The first step in preparation is largely a mental exercise. We search, we read everything on the subject that we can get our hands on. We need become active and involved members of groups with similar concerns. When you do these things, your likelihood of survival  drastically increases.

Everyone needs to be prepared but people with disabilities must be doubly careful. Take every bit of information on survival and use it to create your specific plans live. Then you must become so familiar with the techniques for survival that you are completely prepared to put these plans to work when the emergency arises.  Once you have solidified your plans the second step in adequate preparation is to make sure that you have the food, water, and tools to survive. Don’t forget to buddy-up!

A Mental Minefield

In a real minefield, the danger is all around the people that must cross through it. I have used the term disaster mental minefield because the real danger is right there in front of us. We must step very carefully. Just like in a minefield, you may only get one mistake that can cost you your life.

The last step into the disaster mental minefield is to imagine yourself in a wheelchair, or if you were perhaps blind, elderly, or really disabled by any physical or cognitive problems that would put you at the mercy of the disaster at hand. Persons with disabilities, if properly prepared, loaded with knowledge, having their survival tools on hand before the disaster hits, can survive as well as anyone else. 

Put Yourself in Their Place

While you ponder these things, to try to imagine how much more frightening these disasters could be if they involved you, your family, or friends.

Statistics show that in most, cases, the government’s plans for rescuing the disabled or elderly, fall short and need to be massively improved. This is the primary reason is that percentage-wise, this segment of the population is often in the most danger.

Disasters are a horror that can face us all at any time and totally without warning. The danger is extremely magnified for people with disabilities. These are terrible situations that one could not handle without the help of other people. Once again, that is why WE are here!  We are going to help you increase your chances of survival by eliminating the fear of being unprepared.

OK, Let’s Calm Ourselves by Doing Smart Things First

 

 

 

 

 

There are standard procedures and guides for various situations that need to be read by everyone. The problem is that there is so much information that we often find ourselves looking for a needle in a haystack. 

Our intention here is to boil it down so that it is much easier for you than researching the entire internet and then giving up in frustration or perhaps getting the wrong information to insure your survival.

Make your Plans Carefully

Compare: Paris at Night before the EMP

 

Paris at night AFTER the EMP

 

Whether you are of normal health and capabilities or you are a person with disabilities, PLANNING AHEAD IS ABSOLUTELY ESSENTIAL. If no adequate planning has been done, when an emergency arises, the panic mode sets in and it is rapidly followed by poor and uneducated decisions. These are the times when many lives are needlessly lost.

When careful planning takes place and we follow the plans that we come up with (to the letter) the risk to life is greatly reduced because we have prepared for and practiced for just such disasters. We know just what to do to be as safe and prepared as possible by thinking with a clear head.

Commit Your Plans to Paper

To make this work for you, read through this site, pick out the subjects you feel fit your situation, and start putting your plan to paper.  Next, with the help of some friends make sure that you don’t miss anything important. Another set of eyes will always find the things we have missed in our personal planning. This in itself will save lives.

DEAD END

Once you feel secure about your escape and survival plans, they need to be practiced until they become second nature. Otherwise, you could end up in a dead-end alley. Not a good place to spend the rest of your disaster.

There is yet an additional insidious danger lurking just out of sight. Many people, especially those who do not live in a 3rd world country, feel so “safe” in the world around them, that making plans as to how they should respond to any disaster just never enters their minds until it’s too late! Then the danger to life and limb is compounded all the more. 

Please believe me that things can get much worse than you can imagine in a matter of minutes.

How To Make Plans To Save Lives

The person that wants to be prepared should begin by seeking the advice of people in their support group, available survival publications and local authorities on local emergency planning and of course spend some time cruising this site. You don’t want to miss anything!

When you begin your plan, write it out using the information you found in your search. I suggest you do so with double spacing (there will be a lot of changes as you proceed), a pencil, a thick pad of paper, and a big eraser. When it comes time to mark your maps for your escape routes, you should mark the with permanent waterproof colored markers like sharpies but not until your plans are finalized and run by your friends.  For example, you might mark a danger zone in red on your notes or maps. Use the flexible water-proof maps that are available for your area if you can find them.

Now while your coffee is warm, the air is clean, there are no flames or rising water, you can take your time and make some very good plans. Let’s get started.

By the way, I am not a special forces guy so if you see mistakes or have some ideas you would like to share, please do so in the comment section below. I would love to hear from you!

General Guidelines You Should Follow

When you have planned for as many things as you can think of, and when you have mapped your escape routes and rendezvous points (on scratch paper, mark your maps last) and you are positive there are no mistakes, you should give copies to anyone who you feel might be able to help in case of an emergency. Try to avoid low-lying areas especially if it is raining. I prefer the highest topography I can find. Not only do I stay dryer and out of possible flash-flood areas, but up high I can see who is coming. Then you and your friends should review the plan again together. It is better now than later. 

Minutes Count

Sometimes people have only minutes to safely get out of the house, apartment, office, and neighborhood. Avoid any form of mass transit. They many times have no idea as to what to do or where to go like most people. Trains and subways are scary too. Remember I said CAREFUL PLANNING. Do your best to leave no details out. Keep your gear as close as possible to the door you will lock last as you leave.

So Do You Plan To Run or Hunker Down

It is sometimes argued that people with disabilities should plan to turn their dwelling into a little fort. I have mixed emotions about this. This is a serious subject so it deserves careful consideration if you or a loved one has a disability. Unfortunately, sometimes it is not even an option. You know, if it is underwater, on fire, or just missing, I wouldn’t bother with trying to turn your home into a safe haven.  You will need a fallback plan and regardless of what you choose to do, you will no doubt still need these things below to be safe no matter where you are.

Your Bug-Out-Bag

A bug-out-bag is any easy to carry pouch or backpack. It is intended to carry your personally focused items that YOU need. It is intended to be small enough to be carried even by a child but big enough to carry items essential to your survival.

This is NOT what you want your bug-out-bag to look like.

What Do You Need In Your Survival Kit?

The object is to survive, not live like royalty. You won’t have much space so you will have to minimize but you should have at least the basic supplies listed below. Order and forethought will prevent this type of mess. We have included below a significant list of the items you will need. Almost everything in our list has a convenient link so you can find it quickly to read more about it or to purchase it. I use these items myself and have found them to be reasonably priced and of good quality. You can also use our list to find the necessary items in your home to save money.

Each person should have their own personalized smaller bag. Then if there are others with you, much of what I show you below can go into backpacks. This “Shopping List” below will speed your search considerably.

We decided that we would not assemble a “full kit” since everyone’s needs will be a bit different. You probably have a lot of the standard items sold in a “Kit” so you can check out the list below and choose only the items you need and don’t have rather than buying more of what you already have on hand.

The First Item on Everyone’s List is:

Water: Safe requirements are 1 gal. per person, per day (3-day supply if you evacuate, 2-week supply if you stay at home). Realize that this is a lot of weight. Water jugs make great area lighting. Just use one of your flashlights, tape it to the spout or the side, pointing into the water and say Wow!

Important: A human can go without food for about three weeks but would typically only last about three days without water.

The US gallon, which is equal to approximately 3.785 L, is legally defined as 231 cubic inches. A US liquid gallon of water weighs about 8.34 pounds or 3.78 kilograms at 62 °F (17 °C), making it about 16.6% lighter than the imperial gallon. This is the primary reason I suggest the garden wagon at the end of this list of essentials.

Return to product information

LifeStraw: Lifestraw is a personal water purification device that advertises that it will filter out 99.99% of the contaminates out of at least 1000 liters of water. If there is lots of water around you could use this for your drinking water rather than drag lots of heavy water jugs around. You will need 1 Lifestraw per person. This would work quite well in most climates. Deserts for example, even in the southwest U.S. are not totally dry so you can pack both the Lifestraw and some water just to be on the safe side.

In a post that will soon follow I will give you some interesting and easy to do tips to survive better. I will even show you how to get good drinking water in the summer in the desert.

Food: non-perishable, well sealed, individually wrapped,  energy bars that won’t melt, etc.(3-day supply for evacuation, 2-week supply for home). Not exactly the food your Momma wants you to eat when it comes to nutrition but they will keep you alive. A variety keeps you from getting bored. Homemade trail mix is a favorite of mine.

Cooking is good if you want strangers and animals to seek you out. The scent of fresh fried Spam gets them coming in droves. You can pack a couple of inexpensive Mess kits if you need to cook.

Personally, I can live a long time on energy bars and such. They don’t attract attention and save you lots of space. You can eat your Spam, canned (or bagged) tuna, or canned (or bagged) chicken cold. Keep it sealed until you are ready to eat it all otherwise it will probably get contaminated and make you sick (or dead).

Also, make sure no food, gummies, granola bars, I mean anything edible is left open. The animals will be hungry too. We usually put anything edible into a pouch. Then we take some paracord with a rock tied to the end and throw it over the highest limb we can and then hoist the food pouch up out of the reach of bears, teenagers, and oh yes, tall hungry angry bearded men.

Personal Locator Beacon

Personal Locator Beacons: One of the things I suggest as an extra  safety feature in your planning is to add a PLB (Personal Locator Beacon) to your survival tools.  If you are in a disaster of any kind you can activate your PLB to help the first responders to get you as quickly as possible. Click HERE to read more about Personal Locator Beacons.

Homemade Faraday Cage Instructions

A Faraday cage is just a metallic shield to protect almost all of your electronics from the EMP (Electro-magnetic pulse) or Solar Flare. Until the emergency actually happens, I would also recommend that you keep your electronic devices tightly wrapped in a baggie, then a thick layer of brown paper bag or cardboard, followed by at least a double layer of aluminum foil, duct taped tightly, and lastly followed by another zip lock bag with the seal duct taped securely.

Wrap and tape the foil carefully so that not even a pin hole exists where the pulse can kill anything with electronics in it. You have a lot to take with you anyway so spares are not logical. Besides, the spares will get zapped as well if you don’t do this right. Protect your stuff. If you have a second or old phone this is a good item to add to this shielded bag. You can at least play games on it. (see entertainment items for children)

Pocket Flashlights: Flashlights Have 2 (minimum) in case one wears out or gets damaged and put one in your foil sealed bag. Not the little tiny flashlights or the great big ones. The ones I linked to I use daily.

AM-FM-Weather Radio: NOAA Weather Radio Battery-powered, solar panel or hand crank to recharge at night or on rainy days radio   

Extra batteries: For the flashlights you can use 3 good AAA batteries each and make sure you have spare batteries for everything. I recommend this  set of 6, 18650,  3.7v  lithium  rechargeable  batteries that comes  that with their own charger. They produce a brighter light that I feel lasts about 3 times as long as the AAA’s do. Again bring extra batteries for everything. You should also consider at least 1 set of rechargeable batteries.

First aid Kit: Study First Aid Kits carefully. You probably don’t need a  full surgical  ER in your backpack. I chose the one linked right above. It has a nice sturdy case and 250 items. OSHA rated for 50 persons.

Let me explain, first of all this is a GREAT PRICE. Secondly you probably want extra stuff in case you (being the Good Samaritan that you are) decide to help someone else. You can use common sense to put your own kit together but since I am just lazy I thought this one was quick and easy.

Oh yea, carry a nice thick piece of leather to bite on cause ‘dis might hurt a little. (you know, like in the cowboy movies) you used to watch TV, right?

Multipurpose tool: What is a multipurpose tool? You know one of those outdoors type knives with some of everything folded in. Get a good one with as many tools on it as your can afford. If you are alone 1 is good otherwise 1 per adult. This is an example of quality Gerber tools. Personally I also like to carry a big, scary, folding pocket knife for general use and an even bigger and more scary hunting knife out in the open. Hunting knives an be tied to a fairly straight stick and used for hunting or warding off angry hungry bearded strangers or animals that threaten you.

A Sewing Kit: A sewing kit can fix your pants or  sew up a life threatening wound.Who knows what or who you might need it for.

Cell phone with chargers: I suggest a separate solar charged battery Most of these will charge 2 items at once. They will run your laptop or cell phones, or charge your 2-way radios. This is rated at 50,000 mah (milli-amp hours) that in normal human terms means it will last thru the ball game and the sitcom for the family. The solar panel is built right in as is a bright LED light that also sends an SOS signal that can be seen at great distances. All of this for less than $27.00. Love it. I carry 2 of these.

A Good Sharp Hatchet: Hatchet, not an axe, just a tool for tent stakes, driving nails to put you tent rope up with, to hang your notes and trail markers, and for firewood. You know just an easy to use all-purpose hatchet or weapon. Non-breakable handle, nail puller, and SHARP. Orange so you won’t lose it so easily.

Emergency blanket: These emergency blankets are great. These are  big enough for 2 people to share. (ten per pack). If you are in a warm climate these work by themselves but are not so comfortable to lay on all night. I love my sleeping bag but in cold or wet weather you can put your sleeping bag or blankets inside the emergency blanket. You’ll stay toasty and dry.

General items like hearing aids with extra batteries, spare glasses, contact lenses, syringes, tourniquets, rope, etc. I use 550 paracord for most needs instead of rope and it doesn’t take up much space. This stuff is strong, durable, and bright orange so you can see it and you don’t clothesline yourself or others. 100 feet in this package. You should also bring some extra insulated wire. There should be plenty of lamps or other appliances not in use where you can scavenge it. 

Soap: All purpose soap for the body, soap for  kitchen utensil clean-up after cooking. Plastic bottles of course. For kitchen type clean up you can take your nice hatchet or a rock and crush the end of a stick. Use the crushed end to help clean your mess kit. For more difficult, perhaps burned on stuff, just throw some sand in as a cleanser. Mind you this will ruin your non-stick surfaces but that is a lot more pleasant than dysentery.

12 Volt DC Power Inverter: An inverter connects to any 12 VDC source, like the thousands of abandoned cars setting around and converts it to 120AC to perhaps charge a wheelchair. This model also has 2 USB ports so you can quickly recharge your solar battery or other electronics in the absence of good sunlight or run your laptop and charge your mobile devices. MAKE SURE YOU BRING CABLES FOR ANYTHING YOU WANT TO CHARGE.

Two-way Radios: Radios to keep in touch with one another as well as listening for rescuers. Just a word of caution be careful what information you transmit and always try to be as discreet as possible. I mean computer hackers will have to have something to do during this crisis…

Be sure to include radio codes. By this I mean you should use a code that you denote in your plans to be able to change channels for your rescuers to find you while secretly hiding your radio transmissions from the bad guys. For example, you may choose random channels and then Identify them in your plans as channel A, B, or C. That way when you tell your family or rescuers to go to B, they will know what channel to go to and the bad guys won’t have a clue. Practice intensely or you won’t have a clue either!

I have my secret channels spread out over the range of channels available on our 2-way radios. That way if someone hears our transmissions, and we change to secret channels often, only the people who have our code will be able to hear us. If you need help with this there are many HAM Radio clubs (& ARRL) all around and they are great folks to have on your side. They will gladly help set things up for you and teach you the basics.

Carefully Transmit to Your Primary Channel

Again be on guard. Don’t just answer anyone who calls to you. Be sure that you designate a stand-by channel in your plans as well. Perhaps multiple stand-by channels. Keep your radio batteries charged. Usually spare batteries are relatively inexpensive and easy to find from the radio manufacturer. I got mine when I purchased my radios from Amazon.

Cheap Surgical type masks: masks to protect you from breathing smoke or dust.

Eye Protection: A pair of flexible goggles that won’t break easily (like the ones you use in the  yard or garage) for each person.

Rain gear: A 5-pack of longer hooded lightweight raincoats.  These are kind of thin so they don’t take up much space but depending on your climate, you may want something heavier.

Sleeping Bags: There are only about 15 gazillion sleeping bags out there. This one is inexpensive, w arm, water-resistant, light weight and packs up into that little bag on the right there.                                                                          

Compass: You can install a compass app on your phone but nothing beats a good old mechanical compass. No batteries required. These are designed to work well with maps.

A few large canisters of Bear Pepper Spray: Bear is not the name…  it is to repel bears. Does a pretty good job on ugly dogs, coyotes, rabid animals of all sizes and large angry bearded men.

Work gloves:  6-pack of nylon, nitrile coated gloves:

Inflatable Pillows:  These pillows take up little space and are cheap but the bottom line is that some extra clothes or towels work well too. Even a roll of news papers with a rubber ban or a piece of that paracord to hold the shape will work.

Large roll of aluminum foil: AluminumFoil to protect your stuff on  the get-away or cover your windows at home so you can have a better chance of making people think you are not home. It can protect your electronics at home too. Even that 80 inch 4k TV you just bought. I would just take a portion of foil on the road if walking. Leave the TV behind. 

Over the Shoulder Sling Bag: Use this Sling Bag as your small personal bug-out-bag

Backpacks: Backpacks are a necessity. One or more can  even be attached to a wheelchair. This is an item where you really don’t need a brand name just to get the price higher or that super-cool logo. Adults should plan on a full size pack. If there are children, a small child can carry a lot of essentials like underwear, socks, cloth diapers, and toys.

SAFETY Whistles: Safety Whistles at least 1 per person.Make sure the kids have one and know how and when to use it. This one is not a toy to drive adults crazy with. They should be worn at all times by everyone in your family. If a person loses sight of a family member they start blowing the whistle to find one another. Remind them not to cry wolf.

Medications:  Carry a 7-day supply of your prescribed meds. If you are on the move or if you are staying at home have a 2-week supply and additional medical items if you need them and your First Aid kit doesn’t contain them  I suggest you add aspirin (over 25 years old ONLY), Tylenol, or Ibuprofen if it is safe for you, a bottle of isopropyl alcohol, a bottle of hydrogen peroxide, and a good antibiotic cream. Many people who live through the disaster itself later die from sepsis from little cuts or scrapes that get dirty and then very infected.

Any cut or scrape needs to be treated seriously and it should be cleaned with soap then rinsed thoroughly. Apply antiseptic or antibiotic applied to the wound. If the cut or scrape is low on your body, like feet or lower legs Then dry the area around the wound and wrap the injury with duct tape to keep any nasty water out. Not too tightly and change it often. This seals better than band-aids, etc.

Extra Cash: Strictly up to you again. I can only recommend coins and smaller denominations of paper money. Precious metals are your best bet. Be prepared to barter. You can’t eat money or gold so in just a few days money will basically be worthless. “Booze and bullets” are the prepper’s best bartering currency. Even if you don’t use either they will be almost as valuable as cigarettes. NEVER barter your food away. Better yet, NEVER tell anyone about anything you have.

Games and activities for children:  I just make my kids stand guard for entertainment. I rent my playing cards out to them for gummies. Same with that old cell phone full of games.

Extra clothing:  For example a hat, gloves, and sturdy shoes. Decide by climate.

Cloth Towels: Even a couple of rolls of paper towels. They all can double as wound dressing held on by duct tape in emergencies.

Pet supplies: collar, leash, ID, food

Baby supplies: Bottles, formula, baby food, diapers. You can make them stand guard  or crawl the camp perimeter if they aren’t walking yet.

Extra set of car keys and house keys: (2 sets between 2 adults). If your keys have an electronic entry or starter button, you should wrap them in aluminum foil just like your other electronic devices. In the event your vehicle is still there when you get home it would be nice to drive it to the store to replenish your supplies of everything.

Matches: In a sealed pill bottle or like me,  I just carry some Bic lighters.

Paper: For notes and eye-catching posted messages to friends. A few (8.5 x 11.0) pads of bright writing paper and perhaps a pack of day-glow orange or yellow paper to help people who may be looking for you to find you easier.

Note on your plans what color rescuers will be looking for when they search for you. You may not want to write your plans and post them publicly, but if a friend knows you have for example blank day-glow orange trail markers (folded to make trail pointers) they can follow the route you took. 

Duct Tape is Your Friend: Take several rolls of duct tape with you. You can fix anything with duct tape. Enough said!   

A Package of Nails: To hang your trail markers or use them to attach your tent rope to trees, etc.

Pets: Should be tied to your foot at night, never outside alone. Some folks say they are very tasty if one is hungry enough. Besides that, even a small pet makes for a good proximity alarm.

Plastic sheeting: A 10′ by 20′ package of at least 20 mil plastic construction or painting sheeting. Use it for many things including shelter or even gathering water, even in the desert. Leave it sealed in the bag until you need it.

A signal mirror: This can be found a most any surplus store but a signal mirror can easily be made by taking an old compact mirror out of the case, drill about a 3/8″ hole in the center of the case where the mirror was. Then push the mirror back in and use a pencil or marker to mark a circle on the back of the mirror. Next you can take the mirror out again and scrape the reflector off of the mirror inside the circle you marked. Hot glue the mirror back in. Voila! you now own a signal mirror complete with pink carrying case. Guaranteed the one from the surplus store won’t be so fancy. Just look through the hole with as bright a light as you have available hitting the mirror. You will easily be able to see the point in the distance where you need to signal to. Whew!

Household liquid bleach: You can sterilize to your heart’s content and use it to treat questionable water. It is usually only about 3% bleach so it’s pretty safe.

Entertainment items: Things like playing cards or dice. You can gamble like there is no tomorrow (I know, not funny). The money is worthless by the time you get bored enough to gamble. After world war II the Germans used their paper money for fires to stay warm. That old extra phone can have hundreds of games on it. 

Weapons: Solely At your discretion for obtaining food or for self-defense. NEVER show your weapons. Someone ALWAYS wants your stuff and they often have bigger better weapons than you. Many weapons can be made on the trail as you leave town if you feel they are necessary.

Everyone should have a pointed walking stick to help over all kinds of terrain. It can also be used keep animals or large angry bearded men away. That Bear pepper spray also works well. I’ll stick to the guns and pepper spray. Your choice.

Copies of personal documents:These should include medication list and important medical information, driver’s license or state ID with photo, proof of address, deed/lease to home, passports, birth certificates, insurance policies, copies of you evacuation maps, clearly marked routes and rendezvous locations. Keep these and anything else you think of in the double zip locked bag mentioned above.

Sanitation and personal hygiene items: I’ll let you figure your personal needs here. Toilet paper and lightly scented wipes at minimum. One thing cool for us guys is no toilet seat to always put down.

Do everyone a favor, take a stick of deodorant too. Tooth brushes and flossers will feel great. You can use baking soda for toothpaste or even ordinary toothpaste. Your companions will be very appreciative.

Garden Wagon: Right about now you are probably saying we can’t  carry all of this stuff but an inexpensive garden wagon will probably hold everything for several people. It can even be hooked up to a strong power chair for those times when you need a break. This one has removable sides and will hold up to 1,400 lbs.

Be Very Careful of Human Contacts Along Your Way

Hoard everything because it is up to YOU to protect yourself and your family. Hopefully you won’t have to defend yourselves but if you do, that piece of broken pipe you picked up just might save your lives. 

Keep your thumb on the trigger

Be ready to use your pepper spray when any strangers are near, especially if you ask them to stay back and they just keep coming at you. I would use the 24-foot rule at a minimum.

I saw some armed police officer training video where a guy with a practice knife covered 24 feet before the officer could draw his weapon. Good thing it was a practice knife. 

Almost anyone can and will take from you your stuff or your lives if they decide they need your stuff worse that you do.  Real life can be so much worse than scary TV if you haven’t planned for every scenario you can imagine. You do watch TV right? 

Follow the Plan as Closely as Possible.

The plan is designed to keep you alive. I know that this list sounds like a lot of stuff to carry around but in the event you need it you will wish you had not just skipped that item. Of course you can use some of the items as dual-purpose items and perhaps save a bit. If you are fortunate you may find some friendly fellow travelers who perhaps can help with the load. There is always more safety in numbers anyway.

The sales from this site will help us to continue to save lives. We thank you for visiting and we hope that you will feel rewarded for your time here.

We encourage your comments and inputs along with notes on things we might have missed or good ideas you may have come up with. 

Heads up and God Bless!

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Disasters Have a Disproportionate Impact on People with Disabilities

Disasters Have a Disproportionate Impact on People with Disabilities

  • Those with physical disabilities can be at risk when evacuating if assistance is not available.
  • Individuals with blindness, hearing, or cognitive impairments may struggle with communicating and understanding instructions that must be followed for safety during and emergency.                                         

 

 

 

 

 

These factors can increase the degree of risk in disaster situations with disabled  or elderly individuals.

The Number of People with Disabilities is Huge. People with disabilities account for more than 12% of the US population  and they are desperately in need of effective public programs to increase their planning for emergency preparedness.

There are over One Billion Disabled People Around the World

 

 

 

 

 

 

Following the 2011 Tohoku earthquake and tsunami in Japan, the fatality rate for persons with disabilities was up to four times higher than that of the general population.

Disability has been defined differently again and again across federal agencies. For example, in 2003, there were no fewer than 67 US federal statutory definitions of disability that confuse eligibility for services and supports.

BLAH BLAH BLAH ! Definitions, definitions, rules, rules, discussions, meetings, meetings, conferences, and more. Typical governmental inefficiency, focusing on everything but the real issue here.

 

 

 

 

 

We don’t need all this stalling. We need to take action that will help prevent needless deaths in disaster situations for millions of disabled people.

If as much time and money that was poured into years of useless meetings (all over the world, the travel, and of course, what “Business” doesn’t have expensive luncheons for tax write-offs) this issue would be completely solved already. These people doing this should be ashamed for every life that was lost to disasters in the meantime!

Inequalities in Preparedness

 

 

 

 

 

 

There is insufficient data on emergency planning for people with disabilities and the elderly, but what is available shows this is a very dangerous time for these people. Our primary concern is that inadequate attention and research have gone into determining the things that are of most importance to them during times of emergency or in disaster situations. As of now, when disabled people are in a disaster they have to be prepared to take care of themselves as much as they can. I have put together a list of bug-out survival items to help these people be as prepared to survive as well as possible

Why are people with disabilities among the first victims of  disasters?

Fact: People with disabilities are less likely to be evacuated and are especially vulnerable during disasters and emergencies due to:

  1. They are often not reached in time by the early warning systems that alert the general public which contributes to their vulnerability. Using mass media to broadcast instructions to the public is a necessity. This communication should be audible and in text.

2. Only 20% say that they can evacuate immediately without difficulty in the event of a sudden disaster, the rest could only  do so with a certain degree of difficulty.

3. Some 6% would not be able to evacuate at all.

4. A massive 71% of respondents do not have an individual preparedness plan for any disaster.

 

 

 

 

 

5. Only 31% always have someone to help them to evacuate.

6. 13% have no one to help them. 

7. Only 17% of respondents are aware of their community’s disaster preparedness plan, if one even exists.

8. Only 14% are consulted during the preparation of these disaster preparedness plans.

People with Disabilities Need to Prepare for Disaster

The same challenge also applies to the elderly and other special needs populations. Provided below is a link to a booklet to help everyone prepare and make emergency plans to protect themselves, family, friends, personal assistant, and others in their support network in the event of an emergency.

Do yourselves a favor bu chooseing the appropriate file below and downloading the free booklets in PDF or Text format.

Preparing for Disaster for People with Disabilities and other Special Needs

Preparing for Disaster for People with Disabilities and other Special Needs

America is not ready for a proper disaster response

FEMA and the Red Cross talk a good game, but the disability community is skeptical as to their capabilities to actually protect those in need!  According to the nation’s leading experts on disability and disaster response, we’re not ready.

In fact, thanks to changes at the FEMA and clashes between disability groups and the American Red Cross, we might be even less prepared than we were a year ago.

Every natural disaster quickly becomes a horror story about the elderly or the disabled. The worst cases from last year were the elderly trapped in a nursing home in Texas or those  in a Florida nursing home. Then there was a Puerto Rican baby who needed a ventilator to breathe and had to flee the island. The family and baby made it to the U.S. but then fight for health care on the mainland.

 

 

 

 

 

 

These reveal the ways that a pre-existing vulnerability can make a disaster even worse. Behind these dramatic stories, disabled people routinely find themselves turned away from shelters and unable to access emergency messaging. It quickly find that emergency responses weren’t designed with the needs of disabled or elderly people in mind. Meanwhile, we’re just beginning to understand how terrible last year’s  storms were.

“I was looking for help and no one came,” said Maria Gonzalez Munoz, who spent 30 days after the storm caring for her disabled sister in her blacked-out home. Ramona Gonzalez, 59, died a month after the storm, from sepsis — caused, says her family, by an untreated bedsore. The Gonzalez home is only 3 miles (4.8 kilometers) from the convention center that served as headquarters for thousands of federal and local emergency responders for more than a month after the storm. Maria and her brother took Ramona to a hospital twice, and tried to get her aboard a Navy medical ship in San Juan harbor but they were turned away and couldn’t save their ailing sister.

 

 

 

 

 

Although officially only 64 people died in Puerto Rico owing to Hurricane Maria, the actual death toll is at least 4,600. It is estimated that at least 1 third died from “interruption of medical care”. Nursing home residents and those dependent on life-sustaining equipment were disproportionately affected.

Growing numbers of persons have chronic diseases and use sophisticated pharmaceutical and mechanical support that is dependent on electricity. Chronically ill patients are particularly vulnerable to disruptions in basic utilities, which highlights the need for these patients, their communities, and their providers to have contingency plans that provide electricity along with proper medication, safe food and water during and after disasters.

When government (FEMA) FAILS to get the job done, they (FEMA) feel that non-profit organizations can pick up the slack? What kind of reasoning is that?

The American Red Cross has a Congressional Charter empowering it to provide disaster relief. Experts agree that here too discrepancies have been found between a positive message from the Red Cross and the immediate needs of the disabled in a disaster.

It sounds to many of us like the “Buck is being passed around quite a bit”, but not to where it needs to go.

Many disability experts and organizational leaders feel that their relationship with the Red Cross has never been worse.

The Red Cross is trying to choose which disability organizations they’ll talk to, rather than allowing disabled leaders to take the lead. The whole model is being re-evaluated because “responsibility for the civil rights of people with disabilities is relegated to volunteers.”(?) It is unacceptable that people with disabilities need to rely on the kindness of strangers to get their basic needs met.

Two things should be clear when we discuss recent disasters:

  1. Last year’s death toll in Puerto Rico reflects a colossal failure of our disaster preparation and response system.
  2. The experts from the disability community are worried, but it may already be too late.

Disaster Preparedness and Needs of Older Adults

 

 

 

 

An estimated 14 million people aged 65 or older living outside an institution reported in a census that they had some level of disability, mostly linked to chronic conditions.

Frail older adults – defined as those with serious, chronic health problems – are more likely than the healthier or younger populations to need extra assistance to evacuate, survive, and recover from a disaster.

   

 

 

 

At least 13 million older adults (50 years or older) in the U.S. say they would need help to evacuate during a disaster, and about half of these would require help from someone outside their household.

Before hurricanes Katrina and Rita in 2005, adults 60 or older made up only 15% of the population of New Orleans, Louisiana. However, 71% of those who died because of the hurricane were over 65. 

 

 

 

 

 

During the 1995 heat wave in the Midwest, the median age of the 465 people in Chicago whose deaths were heat-related was 75 years old. The ever growing numbers of the aging population give an even greater urgency to addressing the emergency needs of older adults following a disaster.

The U.S. population 65 or older is expected to almost double in size within the next 25 years. By 2030, some 72 million people – almost one of every five Americans will be 65 or older. People 85 or older are the fastest growing segment of the U.S. population.

Disasters and People with Disabilities: Key Issues

 

 

 

 

 

 

 

  • They may encounter physical barriers like stairs when they need a ramp.
  • There are a multitude of obstacles to communication and other barriers that stop them from reacting efficiently and being able to use the various services offered in the recovery period.
  • In earthquakes people in disabled people cannot crawl under desks and tables.
  • People with sight or hearing problems may be unable to recognize the signs of danger or orders to evacuate.
  • Evacuation problems: Difficulties of movement and the distance to be traveled, doors or passageways too narrow for wheelchairs, presence of steps or other obstacles, unsuitable lifts or ramps, orientation difficulties, perception of hazards and warnings, and emergency response team co-ordination.
  • Disabled people who depend on electrically-powered life-support equipment may find themselves in danger if there is no current during the emergency. And then we find that the evacuation center is not accessible to disabled people.    

According to recent studies in the USA: 

  • 19.3% of the U.S. population suffers from some form of disability, 
  • 80% of emergency managers have no procedures for people with disabilities, 
  • 57% of FEMA emergency managers do not know how many people with disabilities live in their areas,
  • Only 27% of emergency managers have taken a FEMA course on helping disabled people in disasters.
  • It is easy not to recognize the type of disability of a person and thus offer the wrong kind of assistance. People with disabilities need procedures, special preparations, and plans to help them face disasters.

However, “in some ways, disabled people who manage to live with a certain degree of independence are more able to face disaster than people who are not disabled. They have a ‘psychological advantage’…”

Organizations that respond to disasters also need to be more concerned about the needs of individuals such as people with disabilities whose  inputs have not been listened to. 

 

 

 

 

 

In emergency planning and management, the needs of people with disabilities have not been sufficiently taken into consideration and let’s face it, no one knows their needs better than they do!

Typically, civil protection systems are designed for people who do not have disabilities: usually, evacuation plans require, in some measure, the ability to walk, drive, see and hear. Are the disabled or elderly no longer important?

Disabled  Needs in Major Emergencies

  • Training and preparation prior to the emergency
  • Emergency communications need to be accessible and reliable
  • Personal care items and equipment
  • Actions to handle the high dependence on essential services (water, electricity, etc.)
  • How to manage when there is chaos or debris at home
  • Transport and mobility
  • Evacuation and assistance
  • They need to be carefully resupplied with essential goods
  • How to ask for assistance
  • The needs of guide/search dogs 

In emergency planning no one strategy works for all types of disabilities but we need to get good repeatable plans in place.

It is a “Team Effort” !

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Health Through Nutrition – Keep Your Body Healthy & Your Mind Sharp

Get Better Nutrients in Your Diet the Modern Way

Photo by Angel Sinigersky on Unsplash

Everyone knows that a healthy mind and body are reliant upon good nutrition. People with disabilities especially need good nutrition to help fight their ailment. Determining what good nutrition really is and how to be sure that we are getting what we need still is not easy. I have put together some information here that I hope will help in this quest. Of course, before you take anything new, for safety, discuss it with your doctor.

Everything that Tastes Good is Bad for Me 

Or so it seems. Everyone wants to be healthy yet I can’t think of anyone who doesn’t love tasty food, treats, drinks, or deserts. In fact, it is obvious that almost all of us would like to eat our favorite junk food any time and all the time. Wouldn’t it be wonderful not have to worry about the weight gain and the real junk, the poisons in our processed food that can ruin our health.

OK, so now we are not only hungry but we’re depressed too. The bottom line is that the laws of nature just can’t be changed and if we want to get healthy and stay healthy we have rules to follow. The basic smart nutrition diet is good for all people, of all ages. 

(Photo by Dicky Jiang)

You Just Eat What I Put On Your plate – You’re Lucky to Have Food!

How many times did I hear that? As kids we just had to hold our noses and gulp it down, only to find out years later that it was actually bad for us. Our parents just didn’t know better.

It has always been hard to get a good understanding of this nutritional “what-is-good-for-me-or-Bad-for-me thing”.

Trust me on this, it is not your fault and here is why: 

One hundred years ago, no one worried about what they ate. No one ever told them how devastating it was to their health and lifespan to load up on carbohydrates, sugars, and most grains. Highly processed foods had not even hit the market yet. High sugar fruits were seen as nourishing so the more the better, right?

The Lifespan of 20th Century People

The average worldwide lifespan in the early 1900’s was around 31 years. It was a bit longer for people that lived in the U.S., primarily because of better nutrition and more sanitary living conditions.

At that time men who lived in the U.S. had a life expectancy of about 46 and women approximately 48. The current the worldwide average lifespan is now approximately 70, and in the U.S., the average lifespan has increased to 76 for men and 81 for women.

Nutrition Deficient Food – The Reason for Bad Nutrition

Poor Science and No Nutritional Education

Poor sanitation and hygiene were viewed as the root of all disease, and the solution was sterilizing food to get rid of bacteria, mold, and toxins. Rice was polished, and other grains were milled to eliminate husks. One bad side effect of milk manufacturers trying to sterilize milk with heat which destroyed vitamin C, so the rates of scurvy increased significantly.

Bleeding gums and fatigue are common symptoms of scurvy and they increased among children in affluent families. But, despite prolonging shelf life there were some harmful consequences.

Poor Farming Practices

photo by Andreas Selter

To compound the issue, even when people were eating what appeared to be a good diet, the soil in which the food was grown continued to have a lower nutritional effect on crops grown. The photo to the right depicts an area of the Antelope Valley in California. This was filled with lush green alfalfa fields until the soil was stripped of its nutrients from not rotating the crops. This is now just desert wasteland.

So, vegetables in 1900 were less nutritional than say 1800.

The lack of sound growing practices, like crop rotation, basically killed much of our farmlands. That trend is changing but the damage is already done in many areas. Healthy  farmland has sadly turned into unusable and basically unrecoverable vast desert land where few if any nutritious foods can be grown.

THINGS ARE SLOWLY GETTING BETTER

Today moderation has started to settle in and most of us who are concerned with our health have realized that we must moderate what we eat and properly supplement everything that goes into our bodies if we want good health.

We have a great advantage over people in the past in that much of our food comes packaged and this packaging is required (in most cases) to have Nutrition Labels that are supposed to be accurate and that way we can moderate what we feed ourselves.

There are loopholes in these rules  that you can drive a truck through and I can guarantee that every food manufacturer or packager exploits them to the fullest extent possible.

What do I mean by loopholes? Well if, let’s say an item in the health foods section of our favorite grocer contains sugar which comes in various forms, it can be called sucrose, dextrose, fructose, and almost any …ose word. That way the first line of defense for the manufacturer is to “disguise” sugar as something unfamiliar to the average shopper.

Then the second loophole is that if the substance contained doesn’t even have to be listed if it is less than a particular baseline level. That one is tough to deal with. It is therefore our responsibility to KNOW what we are really buying. It is not easy and will take some time but the work is worth it. There are more loopholes but I just wanted to give you an idea of what you are really up against. It’s WAR. Be well studied and well armed.

The nutritional value of food affects every living creature. Humans suffer nutritionally from two sides. Not only is our food less nutritional, but also the food our protein animals consume has taken a major nutritional hit as well. These animals are filled with antibacterial agents and lavish amounts of growth hormones which the animals pass on to us.

The Next Attack on Our Nutrition – Processed Food  

The practice of highly processed food that came along just compounded the issue.

Most people still think that if it looks like cheese and has the word “cheese” anywhere on the label, it’s cheese.  Unfortunately, a lot of the “cheese” in the dairy department is, if you look carefully at the packaging, merely labeled Processed Cheese Food or Cheese Productand is net even cheese. It is basically just colored, salted, coagulated, fat that is skimmed off in the process of making other non-nutritious quasi-food. You are better off with any natural cheese.

This is not just a dairy issue though. Natural trans fats are found in some animal products and are not harmful. Artificial trans fats are made by “hydrogenating” vegetable oils in a harsh chemical process.There are lots of foods for example that contain artificial trans fats (or trans fatty acids) which are created in an industrial process that adds hydrogen to liquid vegetable oils to make them more solid. The primary dietary source for trans fats in processed food is “partially hydrogenated oils.” or “fully hydrogenated fat”. This is Bad stuff for the heart among other scary things. Some say it is more dangerous than cigarettes and cigarettes don’t make you fat.

Take a quick look at this old ad from the 1920’s  

You can see the almost “magical” way  this “vitamin rich” candy was touted as an energizing health food.

The discovery of vitamins and the fact that they are good for us has fueled a belief that if you want to be more healthy, you just need more vitamins and minerals. To some extent this is true. I used to take tons of supplements and researched almost daily on the efficacy of these supplements.

I am not the only one who does this. The obsession with supplements began just as soon as the marketers discovered that people believed what they saw and read. People back then believed that if these wonder-foods are good for the health, more of them must means people would get more healthy.

No Government Watchdog

Remember, there were No “Truth in Advertising” laws, No content labels, No warnings, and that led people to believe the advertisements or word of mouth and to hope for the best. In fact, the advertisers had a heyday back in the early 1900’s because they could sell anything and basically no one was aware of the devastating effect eating poorly had on their health. For example, the once famous cooking oil Crisco was originally developed as submarine engine grease.

At the beginning of the 20th century food was only seen as having 3 important nutrients: protein, carbohydrates, and fat. A few years ago the FDA (Food and Drug Administration) published a food pyramid chart that is to this day still upside down. These days the FDA is responsible for taking action against any adulterated or  improperly branded dietary supplement product but only After it reaches the marketIt seems to me that this should happen BEFORE it reaches market.

The Start of the Supplement Craze

The initial vitamin discovery spawned various products, such as Yeast Vitamine, Double Strength Yeast, Iron Concentrate, and Super Vitamins. They typically contained “vitamin B” (individual B vitamins had not been identified yet) from yeast and various other ingredients.

Vitamins and minerals are still both in much lower quantities in our food than even 50 years ago. Our knowledge of real nutrition has increased substantially yet most people are unaware that vitamin and mineral supplements are necessary for optimum health.

Essential Vitamins

In the early 1900’s everyone, including the experts thought there were only 3 or 4 vitamins and that you could still get them and all the minerals you want from your food. Wrong!

There must be an easier, more palatable way to get these nutrients into our diets.




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Smart Nutrition Diet

There Are 13 Vitamins Essential To Our Health

Vitamin A – Is a fat-soluble vitamin that is naturally present in many foods and is important for normal vision, the immune system, and reproduction. It also helps the heart, lungs, kidneys, and other organs work properly. Too much vitamin A can kill you!

Vitamin B1 Thiamine – Helps to prevent damage to nerves which can lead to paralysis. The processing of grains destroyed vital B vitamins and led to higher incidence of two of the era’s common diseases: A deficiency can cause pellagra and beriberi.

Vitamin B2 Riboflavin– Plays major roles in energy production; cellular function, growth, and development; and metabolism of fats, drugs, and steroids.

Vitamin B3 Niacin – Prevents a deficiency of niacin, whose symptoms include sores and delusions. It is believed to also aid in controlling cholesterol.

Pantothenic Acid – Animals require this to synthesize co-enzyme-A (CoA), as well as to synthesize and metabolize proteins, carbohydrates, and fats.

Biotin – Is found in small amounts in many foods such as eggs, milk, or bananas and is commonly used for hair loss, brittle nails, nerve damage, and many other conditions.

Vitamin B6 Pyridoxine – Plays an important role in the body. It is needed to maintain the health of nerves, skin, and red blood cells. It has been used to prevent or treat a certain nerve disorder (peripheral nephropathy) caused by certain medications (such as isoniazid).

Folic Acid – Helps your body produce and maintain new cells and helps prevent changes to DNA that may lead to cancer. It is used to treat certain types of anemia (lack of red blood cells). It is sometimes used in combination with other medications to treat pernicious anemia.

Vitamin B12 Cobalamin – Is important for the normal formation of red blood cells and for the health of the nerve tissues. Undetected and untreated deficiency can lead to anemia and permanent nerve and brain damage.

Vitamin C Ascorbic Acid – Is a water-soluble vitamin that must be obtained from the diet or supplements. It has been linked to many impressive health benefits, such as boosting antioxidant levels, lowering blood pressure, reducing the threat of heart disease risk, guards against gout, improves iron absorption, boosts immunity and reduces dementia risk.

Vitamin D – Helps your body absorb and regulate calcium and phosphorus. You can get it in three ways: through your skin, from your diet, and from supplements. It also plays an important role in maintaining proper bone structure.

Vitamin E – Is a fat-soluble nutrient found in many foods. In the body, it acts as an antioxidant, helping to protect cells from the damage caused by free radicals. Free radicals are compounds formed when our bodies convert the food we eat into energy

Vitamin K – Is used by the body to help blood clot.

You will see these listed on many food item labels or on the content labels of the ubiquitous multivitamins seen everywhere. There is little to no governmental quality control to protect us from unscrupulous vendors who will sell almost anything and then have the audacity to tell folks some fairy tale about how their new “supplement” will cause you to lose 90 pound in 9 days or something equally ludicrous.

Snake Oil anyone!

We also know that there are 14 Essential Minerals

All of these are known to be needed in greater quantities than what is normally available from our food:

Choline: Choline is an essential nutrient that is naturally present in some foods and available as a dietary supplement. Choline is a source of methyl groups needed for many steps in metabolism. The body needs choline to synthesize phosphatidylcholine and sphingomyelin, two major phospholipids vital for cell membranes.

Calcium: Calcium is a mineral that is necessary for life. In addition to building bones and keeping them healthy,calcium enables our blood to clot, our muscles to contract, and our heart to beat. About 99% of thecalcium in our bodies is in our bones and teeth.

Chromium: Chromium is an essential trace mineral that can improve insulin sensitivity and enhance protein, carbohydrate, and lipid metabolism. It is a metallic element that people need very small quantities. …Chromium is a mineral that humans need in very small quantities.

Chloride: Chloride is an important mineral involved in the regulation of the body’s electrolyte balanceacid-base balance, and also is essential for proper nerve and muscle function. Healthy individuals do not need to be concerned about obtaining enough chloride; when eating a balanced diet, chloride needs are typically met. Patients who are extremely ill and have acid-base imbalance typically require careful monitoring of electrolyte levels and may need supplementation.

Phosphorus: Phosphorus is an essential mineral that is required by every cell in the body for normal function. Bound to oxygen in all biological systems, phosphorus is found as phosphate (PO43) in the body. Approximately 85% of the body’s phosphorus is found in bones and teeth.

Iron: Iron is an essential mineral and is necessary for the transport of oxygen (via hemoglobin in red blood cells) and for oxidation by cells (via cytochrome). Deficiency of iron is a common cause of anemia. Food sources of iron include meat, poultry, eggs, vegetables and cereals (especially those fortified with iron).

Magnesium: Magnesium is Involved in Hundreds of Biochemical Reactions in Your Body. Magnesium is a mineral found in the earth, sea, plants, animals and humans. About 60% of the magnesium in your body is found in bone, while the rest is in muscles, soft tissues and fluids, including blood.

Copper: Copper is an essential nutrient for the body. Together with iron, it enables the body to form red blood cells. It helps maintain healthy bones, blood vessels, nerves, and immune function, and it contributes to iron absorption. Sufficient copper in the diet may help prevent cardiovascular disease and osteoporosis, too.

Molybdenum: Molybdenum is a trace mineral found in foods such as milk, cheese, cereal grains, legumes, nuts, leafy vegetables, and organ meats. The amount in plant-derived foods depends on the soil content in the growing area. Molybdenum is also present in water in varying amounts.

Potassium: Potassium is found in a wide range of foods, especially fruits and vegetables such as leafy greens, tomatoes, cucumbers, zucchini, eggplant, pumpkins, potatoes, carrots and beans. It’s also found in dairy foods, meat, poultry, fish and nuts.

Selenium: Selenium is a nutrient that the body needs to stay healthy. Selenium is important for reproduction, thyroid gland function, DNA production, and protecting the body from damage caused by free radicals and from infection.

Zinc: Zinc is found in cells throughout the body. It helps the immune system fight off invading bacteria and viruses. During pregnancy, infancy, and childhood, the bodyneeds zinc to grow and develop properly. Zinc also helps wounds heal and is important for proper senses of taste and smell.

Manganese: Manganese is a mineral element that is both nutritionally essential and potentially toxic. The derivation of its name from the Greek word for magic remains appropriate, because scientists are still working to understand the diverse effects of manganese deficiency and manganese toxicity in living organisms.

Iodine: Iodine is a mineral found in some foods. The body needs iodine to make thyroid hormones. These hormones control the body’s metabolism and many other important functions. The body also needs thyroid hormones for proper bone and brain development during pregnancy and infancy.

More than 90 percent of Americans fall short on at least one essential vitamin or mineral.

The Hard Way to Get Your Nutrients

 

 

 

 

 

 

In the past, I have religiously taken both vitamin and mineral supplements since I played football in high school. Until just recently I was greeted with a barrage of supplement bottles every morning. The cost was huge and we never REALLY know if what we are taking is what is on the label.

Of course the best part is choking down all of these pills not to mention the time involved with this mess. Again we must remember that without governmental restraint, there is no one to validate the actual contents of a given supplement.

There must be an easier, more palatable way to get these nutrients into our diets.

 

Keto Diets – The Easy Way

avoid foods like pizza, lower red meat intake

 

 

In a nutshell: Keto diets are all the rage and for good reasons as well. The most important is that it really works. If we try to follow the diets, they are basically like all the rest. We typically find it to hard to follow, which equals boredom and lack of interest in the diet, which leads to Pizza.

Ketosis is the state of maximum efficiency in proper energy production. Energy obtained from good fats. Our bodies were designed to use fat for energy, not sugar or carbohydrates which turn into sugar. Our bodies cannot use all of those sugars so our bodies store it as fat in all of the most visible and embarrassing places. There is hope after all. Getting into a state of ketosis no longer takes weeks or even months. There is a new and surprisingly efficient product called “Keto//OS”. You can find out more  here   Keto//OS from Prüvit

Modern Efficient Kitchen Appliances to the Rescue!

Blenders and juicers are two great ways to extract nutrients from our fruits and vegetables. Almost everyone thinks blenders and juicers are the same thing when in fact they are very different machines, with two quite different purposes. Yes, they both process tasty fruit and veggies into a delicious, nutritious drink but the way they do it, and the result, is not the same at all.

A juicer separates the fiber or pulp from the fruit or vegetables. This leaves only the juice for you to drink.  This means that you can pack more fruit or veggies in per cup and you get all your vitamins and nutrients in the most easily digestible form. The remaining fiber pulp is discarded which we know is not a good idea. The fiber is a wonderful aid to you digestion.

A juicer gives you a blast of nutrients but guess what, you’ll get hungry much faster! Scary when you are struggling with weight loss.

A Blender processes the whole fruit or vegetable, including the fiber. This makes a thicker drink (usually called a smoothie) which takes longer to digest. If you have not become a smoothie fan you should. You still get all the nutrients, but they are released more slowly. This satisfies your appetite, provides all of the nutrients (including the much needed fiber) and leaves you feeling more satisfied and you will feel full for a much longer time!

Now you are talking!

Photo by David

The Easy Way to Get Your Nutrients

This is my Nutribullet Balance, 1200 watt BLENDER. It is simply fabulous. Now I don’t know about you but this looks a lot more appealing than that huge stack of supplement bottles. I know it certainly tastes better.

I can even hide all manner of green stuff in here and the kids never know they are drinking spinach, broccoli, or kale.

When using the Nutribullet Balance the ingredients to your favorite smoothie are weighed via a built-in scale inside the unit. That way you build a much more exact drink. When each item is added to the cup, it is automatically  weighed and added to the total weight for the recipe you are putting together and transmitted to my phone using Bluetooth. The Nutribullet Balance App gives you a list of items in the recipe stored on your phone. You add them into the cup and a colored band in the app displayed on my phone indicates when to add the next item.

Photo by David

It Just Doesn’t Get Any Better

I press down on the cup and in mere seconds of 1200 watt power and I have a really delicious and nutritious treat. Nuts, seeds, fruit, vegetables all blended together in into this lovely creamy concoction that even my teenager loves. 

This is the only way to go. I also shop for NON-GMO fruits and vegetables and that way I am sure to get the pure nutrients we need, without the free pesticide and the unknown effects of Genetically Modified foods on our bodies and minds.

I have found Amazon to have the lowest prices and a huge variety of the Nutribullet Blenders.

There are many juicers and blenders on the market so how do you choose the right one for your needs?

With a little research you can easily find these items for sale. Just be careful to find one that is really going to do the job for you. I  buzzed through 7 or so of these juicers and blenders before I found one I really liked. I mean REALLY LIKED!

I’ve Got the Power !

Power is the most important feature for me. I am just a busy, impatient person. I haven’t got all day to wait for Mr. Winky Dinks itty bitty juicer or blender. I always want it done NOW.

This along with other things like being able to make hot soup (in another version of the Bullet) are a great reason to choose the Nutribullet quality. Of course the NutriBullet BRAND blender is the best of its kind and the warranty is marvelous!

Let’s face it, which would you prefer, the ¼ watt Mr.Itsy Bitsy juicer or blender OR the 1200-watt, bone crushing power of the latest Nutribullet Balance?

No question, right? You’re busy too!

Reliability

I have never had my new Nutribullet bog down, start to smoke from overwork, or just plain die on me. You will be the coolest nutrient nut on your street. 

This is No Ordinary Blender!

The NutriBullet Balance model is the only blender that pairs with your smartphone or computer using Bluetooth technology. This paired device will then display nutritional content in real time as you’re building your smoothie blends or mixing great dishes for meals. The free mobile phone app can then perform all sorts of wizardry.

  • No more recipe books

  • No more measuring cups

  • No more guesswork

  • No more mess and Bullet cleanup takes seconds

  • When using the NutriBullet Balance you know exactly what’s in every smoothie you make!

  • Perfect for special diets and health requirements.

  • The Nutribullet Balance delivers an all-around top-quality delicious smoothie.

Please Tell Us Your Nutribullet Experience Below

Good experience or great recipes with your Nutribullet. Only takes a minute and we would REALLY appreciate hearing from you. You can comment below.

Now that you are the most healthy person you know, let’s see how smart you are:

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Personal Locator Beacons

Modern Technology to Save Your Family

Personal Locator Beacons = Security

Personal Locator Beacons SAVE LIVES EVERYDAY

One of the things I suggest as an extra safety feature in your planning is to add a PLB (Personal Locator Beacon) to your survival tools.  If you are in a disaster of any kind you can activate your PLB to help the first responders to get you as quickly as possible. 

Yes, you have done all of your planning in detail but when we least expect it, all of our paths to safety might be blocked for one reason or another and not be available so PLBs are an ideal contingency plan.

They will all function inside your double bagged zip locked quart sized bags that you have your papers, plans, phone list, notes, and maps in, not the bags where you should store it covered with an aluminum foil Faraday bag to protect it from an EMP like your other electronics. This one is safe to use outside the plastic bags. You can just clip it to your jacket or whatever.

The areas you might be in, for example the downtown area of a large metropolitan city will often require a higher quality and higher powered transmitter, just like if you are way out in the country camping or when you are sitting in your car (that was just disabled by an EMP) way out in the middle of nowhere.

Your average range of the bargain-basement priced items is generally limited to line of sight between you and those who you desperately need to receive your emergency signal. This is an especially dangerous problem if your signal is cellular. I have seen PLBs that are no more than cell phone apps. Ever lose your cell connection or even kill your phone when you accidentally drop it into the toilet? Besides you probably had your cell phone on you when an EMP occurs. Don’t fool yourself into thinking free or cellular is good enough. More than likely, this would increase the loss of life.

The exception to this problem is to purchase a registered GPS PLB  which uses Global Positioning Satellites to find you. Find one that is one that is water-proof and buoyant. Choose the one that is rugged and highly rated. Like any electronics we buy, you pretty much get what you pay for so if you can afford it, this is not the time to look for bargain basement prices.

You can easily spend over $1,000.00 for a high quality PLB but this is usually not necessary.  I have also seen numerous units that are priced less than $100.00 although I don’t know how I would feel with a bottom of the line PLB in an emergency.

The unit I chose was found on Amazon who has units with lots of bells and whistles, some of which you just don’t need to spend the money on. The price for my PLB is in the bottom 25% price range of all the units I looked at. I love the security this PLB offers and you don’t need to be rich to get one. The reviews on this unit are fabulous. Any way you look at this unit, it is a bargain since we all prefer to survive as long as is possible!

The  ACR PLB-375 ResQLink+ 406 Buoyant Personal Locator Beacon (the yellow unit shown above) is just right for me and trust me, we are not rich either. However when the water is rising or smoke is billowing I don’t want to die with the savings I made on that el-cheapo PLB still in my wallet.

When you get a Personal Locator Beacon (a GPS version), be sure to follow the instructions in the paperwork to get it registered so you can verify that it will be working before you need it. 

To illustrate just how important this aspect of your survival planning is, just know that nearly all aircraft have automatically activated ELTs (Emergency Locator Transmitters) to help searchers looking for a downed aircraft to find it quickly as well. PLB‘s are the personal version of these all-important devices. Don’t be caught dead without it!

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Special Needs People – Overcoming Disabilities

Our Goals Here On This Site

Our goals here are to broaden the spectrum of understanding and the need for ever-improving conditions for the lives of people with disabilities, our Special Needs People.

We will present important information about private, public, and governmental policies and benefits that will hopefully help these people to enjoy their lives more. We will help them to find funds for education, housing, transportation, proper medical care, and more.

In addition, we have found a need of people with disabilities which is not mentioned much and that we feel needs to be addressed. That need is that a hugely disproportionate number of people with disabilities become the victims of disasters of many kinds as compared to the general population. Clearly various government and private organizations need to step up to the line and take this issue more seriously.

We will, as always defend these Special Needs People  and help to protect their rights. We have a comment section below and would LOVE to hear your story.

The Webster’s Definition of Disabled People

Per Webster’s it means: Incapacitated by illness, injury, or wounds. I would argue that not all people with a disability are “incapacitated”, their disability just causes them to have to do things differently.

For example:

I am disabled when it comes to woodworking. I follow the rules: Measure it twice, cut it once. Sounds simple but I invariably measure it twice, cut it once, throw it away and repeat.

These were supposed to be beautiful end tables. I left while I was not injured…

My car was disabled in Cincinnati on a recent vacation.

No worry, dis take maybe 30 minutes, OK boss?

 Somehow this descriptive word “disabled” illustrates a lack of understanding in its impact on Special Needs People.

These precious people with disabilities are just like us. They have a multitude of human traits that define them as unique individuals. They think, they grow, they bleed when cut. They have families, they have ups and downs, they feel pain when they are injured or mistreated, and they have bad hair days just as we do. They are just people with some “Special Needs”.

Time to Connect

I would like  to just run through some thoughts and experiences with my special friends so that you will develop a greater understanding of who we are talking about.

First, just think about the disabled friend or relative you know best. Do they have feelings, dreams, desires, goals just like those of us who are blessed with good health? OF COURSE, THEY DO!

If you don’t have a special needs friend, go get one. YOU will be blessed. Treat them like normal. I have found, without exception that this is their preferred choice in interaction with you. Let’s dig into this a bit and see how we might kill two birds with one stone by understanding them better and understanding our reaction to them.

Are They Contagious?

Their conditions are  not contagious. The only thing “Contagious” about them is the invincible outlook they have on a life that has chosen them to carry some unusual and strenuous burdens.

They are often very lonely because we often act, either consciously or unconsciously, as if they are contagious. They have the same set of needs for human touch, thoughtfulness, love, friendship, and courtesy just like we all expect. 

 Not guilty you say?

Let me ask you this… when a person with a disability holds their hand out to shake yours, what is (hopefully, what was) your first internal reaction? Most people are worried a bit, especially by physical contact with them. You can admit this to yourself, even if you never gave it a conscious thought before. 

I had a mental “ouch” when I realized that I unconsciously did this. It was a personal fault of my own, due to lack of understanding and education about disabled people until I was blessed with a special little boy who came into my life.  This little fellow was diagnosed with SMA (spinal muscle atrophy) and is paralyzed from the chest down. I always wondered how the parents of a child with a disability could say “we are just so blessed by…”. I found out through this little boy named David.

Adjust Your Visual Perception

I suggest that you try to look at them with a different perspective. Like the image to the right. Do you see a goblet or 2 faces? I am just trying to point out that we need to see what is really there.

People with a disability have all the same trials and tribulations you have. They live their lives with a physical burden that would bring tears to our eyes if we tried to envision ourselves or a loved one in this same situation. So, my recommendation for you is to not feel guilty. Just try to see them as “normal”.

Shake their hand, give them a hug. They will be thrilled to see the wall go down. They will be delighted to be treated normally. Oh yea, you will be delighted as well. You see they are not contagious physically, just spiritually.

My Friend Mike

I met Mike when an acquaintance of mine became his caregiver. Having no real contact or dealings with a person with a disability before this I wondered how she and so many other caregivers for Special Needs people, could handle this. It just has to be a trying and stressful job.

Do these disabled people feel strange to the touch? Are they able to think and feel as I do? The questions like these go on and on. Fortunately for us with normal health, most of the people with disabilities I know have a special skill set that is designed out of necessity to help them make us feel “OK” with them. Imagine that!

A Smile and Handshake

My friend Mike was my first real friend with disabilities. I met him when he was about 40. He was the victim of Polio at the age of 9. He would occasionally get that shallow smile and a faraway look in his eyes when he would talk about being able to walk and run like other children. Then he would do a little time travel through his early years but always quickly returned to the present, the place where he dwelt and had to work a lot harder than me to just get by.

He would always have a smile on his face. His hand was always out first. He never faltered in this. Our ease of interaction was because of HIS behavior, not mine. It was the stake in the ground so to speak marking the beginning of our friendship.

An Example of Their Goals

Mike was like most of the people with disabilities that I have come to know over the years: strong and persistent. His greatest goal was to become an attorney. He chose this so that he could help other People with Special Needs  by getting them the facilities and benefits they needed but  were often denied.

A simple ramp here and there for wheelchairs or an accessible fire escape designed for the capabilities of people with disabilities. 

Photo by Jonathan J. Castellon on Unsplash

For example, when Mike was taking the Arizona Bar exam, he was forced to use the restroom and because it was not set up for Special Needs People, his wheelchair became jammed in a hall leading to the men’s room. No one heard his shouts for help.

It wasn’t long before some thoughtful, caring individual who was administering the exam felt it necessary to disqualify Mike from finishing the exam. How wonderfully fair (tongue-in-cheek) the system was then.

Mike was undaunted by this. He had increasing health issues which prevented him from becoming an attorney, but he still became a pioneer in the country’s need to change the laws and provisions for Special Needs People.

He charged ahead in the quest to provide everything that he and others needed so that they all were safe and set free by a society that up to this time just wanted to keep the them in a dark room with the door closed. You see, it was easier for most people to deal with the people with disabilities if they didn’t see them or hear them, might less touch them or treat them with even a modicum of human respect. Thankfully, when Mike passed away, my journey was not done.

So Why did I tell you this? 

The simple answer is because YOU needed it. I needed this experience as well. You need to roll this around in your mind to get a good grip on it.

REDEMPTION – The action of saving or being saved from sin, error, mistake, or evil. 

 A few years after my friend Mike passed away I was given another opportunity to reach into the world of people with disabilities. I married a sweet young lady who brought a surprise to me that has permanently changed my life for the better. This is when Little David and I became good friends. He is commonly known as Little David so that everyone can clearly define who they are talking about.

Little David took me under his wing, and just like my friend Mike did years earlier. Even though he was not aware of it, Little David began to knock down the remaining barriers that were keeping me from what seems to be God’s plan for my life.  What a wonderful gift! Almost immediately, the disability and the wheelchair disappeared. Only the person remained. 

Let’s Meet this SMA Kid!

Little David, like most children, has a heart made of gold. He laughs, plays as much as SMA allows. He cry’s when he is physically or spiritually hurt. You know, just like any other “normal” human.

Since my marriage to his mother and to this very day Little David (who I might add is not so little now at 16) has continued to amaze me with innate abilities to deal with his world just like Mike did.

Little David was my final proof that these people with disabilities are indeed special. He makes straight A’s in school, even in the advanced classes. He has the maturity and clarity of thought of a much older young man. He never gives up and always gives what I feel is a gargantuan effort to do the best he can in every situation. He is tough! 

David is fiercely competitive. He “rules” when playing in his on-line video games. I have asked his gaming buddies and they all verify that David is the most fierce competitor they know. 

If he can pick up a 5-pound weight, he always asks for the 6-pound weight. He always stretches the extra inch higher. To top it off he has a great personality and is polite and considerate to everyone he meets. He is always the first to help out.

David had 3 terrible surgeries – Things They Courageously Go Through  

One to straighten out his legs. That required severing both femurs and having them straightened and anchored in place with hardware until the bones healed. He finally had the hardware removed and keeps them in a bag as trophy’s.

The next surgery was for scoliosis, another horrendous surgery where the surgeons lay open the whole back of the patient exposing the spine and then placed several pounds of permanent hardware around the entire spine so that he can sit up straight without pain.

The final surgery came last year when he had to have lung surgery to relieve serious pneumonia symptoms with an array of drain tubing drilled through his chest and sides, directly into his lungs.

As you can see these were definitely painful yet he never whines. It is just his life. He still lives it to the maximum.

Little David, like Mike and most “Special Needs People”, have this energy or spirit that is hard for me to adequately describe. They rarely lose focus. They never give up! They warm your heart like a fireplace on a cold winter day.

If you are blessed with knowing any of these special  people, I am sure you love them like we do. You cannot avoid giving them the respect they deserve to get.

Please take a moment to brag on them a little. There is a comment section at the bottom of this page.

Hopefully I have been able to give you a better idea of why these people are indeed special. I hope that I have been able to stir your interest in this fantastic group of people, young and old, civilian and veteran and our responsibility to give them a hand up and cheer them on to success in normal living.

I have had a few comments recently on the term Special Needs People. I honestly felt that I gave my reasons above as to why we (Little David and so many others) prefer the term Special Needs People or even People with Disabilities. Some have tried to tell me these are demeaning and that I should just say “Handicapped” and that seems demeaning to most people with disabilities. For now I will go with what Little David feels is most proper.

What are your feelings on this? I would love to have your inputs. Look for the comment section below.

Please share any comments or suggestions below and if you wish a photo and story about your special friend or tell us about your life. Hopefully this site will be a step forward to a  greater level of understanding to help all Special Needs People!

Please Bookmark us, there is more to follow.

Thank You!

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What is an EMP

What the HECK is an EMP?

Wiki Says:

An electromagnetic pulse (EMP) is a short burst of electromagnetic energy interference caused by an abrupt and rapid acceleration of charged particles, which can damage electronic components by short-circuiting them. An EMP can contain many energy components of the electromagnetic spectrum, from the very low frequency waves to the ultraviolet wavelengths. One very common cause of EMPs are lightning strikes, which supercharge ions in the atmosphere and cause electricity in the power lines to surge. 

For example, a large solar flare striking the earth would cause an EMP.

 

 

 

 

 

 

An EMP used as an act of war is when a nuclear device is detonated several hundred miles up in the atmosphere to intentionally disable a large area’s electronics. That single detonation could bring any country to its knees! 

 

 

 

 

In any event, if you see one of these things, 
you know the drill...

 

 

 

 

 

 

don’t worry… it’s too late.  

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What is SMA?

A Brief Rundown of SMA

This is the neurological disorder that has put Little David in a wheelchair from the age of 4  to where he is today in his journey with SMA and the treatments he has had along the way. Make sure you read about this young man’s situation and his struggles to date. More details can be found on the first page of this very site entitled SpecialNeedsPeople.Click on the link if you didn’t get a chance to read Little David’s adventure.

SMA is an abbreviation for Spinal Muscular Atrophy

SMA is a neurological disorder. It is not contagious. SMA is a genetic disease that attacks nerve cells called motor neurons in the spinal cord and the brain stem. When the motor neurons die, this cuts off communication to the muscles which then get progressively weaker and atrophy due to lack of use. Of course, being a genetic disease, SMA runs in families. As you can imagine, atrophied muscles affect walking, crawling, swallowing, breathing, head and neck control. The level of muscle control varies due to a number of factors from the age of onset to the level of intensity of the disorder. There are basically 4 primary types of the disorder although, like most disorders, there are variances but we can pretty accurately divide the disorder into 4 basic types.

Types of SMA

Type I – Type I is a severe form of SMA that is evident at birth or within the first few months of life. Infants diagnosed with Type I are developmentally delayed. Most are unable to support their head or sit unassisted. Children with this type often have breathing and swallowing problems that often lead to choking or gagging.

Type II – Type II is characterized by muscle weakness that develops in children between ages 6 and 12 months. Children with type II can sit without support, although they may need help getting to a seated position. Individuals with this type of SMA cannot stand or walk unaided.

Type III – Type III has somewhat milder features and usually develop between early childhood and adolescence. Individuals with type III  can usually stand and walk unaided. Most of the time walking and climbing stairs may become increasingly difficult. Many affected individuals will require wheelchair assistance later in life.

Type IV – Type IV often occurs after age 30. People with type IV usually experience mild to moderate muscle weakness, tremors, twitching, or mild breathing problems. Usually, the muscles close to the center of the body, such as the upper arms and legs, are affected.

Little David is basically in the Type III range. He was able to walk, although unevenly, at an early age but by about the age of 4 he just let go of his little walker and sat down.

Spinal Muscular Atrophy Causes an Exceptionally High Infant Mortality Rate

SMA is the leading heritable cause of infant mortality worldwide. It is a neurodegenerative disorder that presents as progressive muscle wasting and loss of motor function. As motor nerves are located in the spinal cord, a vast decrease in muscle control for several activities (such as breathing, walking, head and neck control, swallowing) occurs. SMA is an autosomal recessive disorder caused by deletion of the survival motor neuron gene 1 (SMN1).

SMA Facts

  • 1 in 6,000 births is an SMA baby
  • 1 in 40 adults is a carrier of the gene mutation that causes SMA
  • The child of 2 carriers has a 1-in-4 chance of having SMA
  • ​7.5 million Americans are carriers
  • There is now an FDA-approved drug for SMA called Spinraza created by a wonderful company called Biogen.

Over the last few years there has been a lot of promising research into finding a Cure for SMA. Little David is in the first year of his treatment. He is still disabled but says he can feel a small increase in his physical strength. He says he gets the urge to stand up but at least at this point is still too weak.

  

Comments on this SMA article

If you have SMA or a friend, a loved one has SMA  please leave us your thoughts below.  If you found this interesting, or even way out in left field, Please comment below. We All benefit from every comment or suggestion and it only takes a minute to let us know what YOU think. Thank You!

Hard work is not magic.

Click me and come alive!

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Review of Focus Video: Focus on our capabilities and not our disabilities.

REVIEW on Focus Video

Focus on our capabilities and not our disabilities. We are not handicapped, but handi-capable!

Length of video: 29 minutes

created 2012

Focus is a relatively short video that expresses the feelings of most Special Needs People right from the title and subtitle. Directors Harold Sistrunk, Jr. and Judy Redlich are Special Needs People themselves so the interviews of other Special Needs People in this video take on a whole new sincerity as compared to something else that was done by a person or persons that are not disabled.

I was thoroughly happy to see all of the people in the video were in some kind of Special Needs situation rather than actors. Each and every person in this video displayed a level of courage and good old-fashioned stick-to-it attitudes. They factually show what can be done with a life even under extremely trying medical difficulties.

This should be required viewing for every young person in high school or college. My son, who is a victim of Spinal Muscular Atrophy was basically awe-struck by the accomplishments of these people. How absolutely inspiring, start to finish. I really feel that this is necessary viewing for every Special Needs Person.

Comments? We would love to have your take on this short yet super-inspiring video. All responses are very appreciated! Please find the comment window below.

THANK YOU!

 

 

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Society Recognizes People with Disabilities!

Society Finally Sees People with Disabilities!

 

 

 

 

 

 

 

 

 

As we take a quick peek into the world of the disabled and the issues they face you will see that I have provided many useful links to various assistance programs. I have links to  sources of necessary equipment, training, and educational sources to help them improve their quality of life.

Please note that my primary focus here is to help people with disabilities, our “Special Needs People” to get the services and programs they help need to break out of their circumstances and to become all that they were meant to be. Not charity, just a hand up!

As you read through this please take a look at these links to the world that are here. The Solutions are well on their way. This is intended to help make the various resources known to everyone who needs them.

Shout It Out

 

 

 

 

 

 

The Disability Rights Movement, that once silent group of people are getting more focused and noisy every day. We not only have the people with disabilities who have genetic disorders like Little David, but also folks who have had some kind of debilitating accident, illness, or have been wounded in service to this country. Wounded U.S. Veterans are unfortunately gaining more members daily. 

There are Disability Grants for all kinds of needs . No longer are the disabled left to fight for their rights all on their own. 

Our Wounded Veterans

 

 

 

 

 

 

One group of people that is growing daily is the group of heroes we know as wounded warriors, the Purple Heart Recipients.  These young men and women have voluntarily given so much for our country. We must never forget the high price of freedom!

The Cost for Many is Dramatic

 

 

 

 

Even with great amputee services for our   wounded warriors, many of these young people over the last few years have been ignored by society. Fortunately the Amputee Services of the Veteran’s Administration is second to none with  superior medical services and state of the art prosthetics.

Depression & PTSD Treatment

 

 

 

 

 

It is shocking to hear that there are so many wounded who are overwhelmed with things like Depression or PTSD (Post Traumatic Stress Disorder)  because of extended exposure to the horrors of war. Even more distressing is  that they are killing themselves in droves every day just to escape the pain and mental anguish.

#OperationSong 

Operation Song

He Took My Place” by Gary Lima

This #OperationSong spotlight is on “He Took My Place” by Veteran Gary Lima who served in the Marine Corps as a staff sergeant and the Army as a major. Gary served during the Cyprus Conflict in 1974 as part of a Marine helicopter unit and later had a full career in the Army, from which he retired at the rank of major.

This was published by the Veterans Administration. I hope it touches your heart as it did mine. Click the image above to hear the song.

All Gave Some, Some Gave All

 

 

 

 

 

It is my feeling that we all need to care for them in the same way that they so willingly sacrificed for us.

I think all disabled people, no matter what the reason is for their disability, should be made aware of the multitude of excellent programs offered by the U.S. Government. Their needs go far beyond what we ever imagined. Fortunately there are many benefit programs designed especially for them.

Financial Aid and Grants

 

 

 

 

 

 

Programs to provide the disabled with a huge array of financial benefits and services are now available. There are now grants for everything from college funds to starting a new business. There are job programs and social programs. Some programs provide homes or home loans for the disabled. Why there are even debt relief programs available.

Specialized Equipment

There are many benefits to cover all of the specialized equipment that would otherwise be out of financial reach for the majority of disabled people through numerous grants. The government is not the only source of grants and aid. We now have ever ever growing number of private institutions, all helping to make the impossible possible.

 

 

 

 

 

Why even a meager power wheelchair can easily cost thousands these days. The same goes for a vast array of other specialized equipment to help families to carry on with hope and dignity.

This is the chair that Little David has and it cost around $15,000. Every feature is carefully chosen to best help the person and then custom built from the ground up to perfectly fit each individual.

This is a list of some of the more popular sports the disabled are gravitating to: Rugby, motocross, basketball, tennis, softball, speed sailing, snow sports, and wheelchair racing. More are becoming popular every day.

Very specialized fitness and sports services and available for people with disabilities. 

There are also many programs especially for veterans with disabilities.

No More Dark Ages

 

 

 

 

 

No more dark ages for any of these people. They have become energized and uplifted by all of the goodwill along with their new found freedom and mobility. Some of the finest technological aids are now available and a multitude of grant programs for those who choose this path.

Training Is The Solution, the Next Step To Independence

No, it’s not enough. I am sure that not a single disabled person would rather have all of these benefits than to be whole and healthy. Still, we, through government programs and civilian organizations are trying harder every day to help them get through this life. A life that most of us cannot even imagine. 

People with disabilities have won many rights and they are a Fierce Army to face. They will not accept anything less than success along with the freedom and independence it brings.

Now to make use of all of this, training, jobs, more education, and understanding is what they need now. This, I feel, is the final hurdle for most folks with disabilities. The step forward to blending invisibly as far into our worldwide societies as is possible.

More Details to Come

I have just touched ever so lightly on what the government provides for these unfortunate people who do not want our pity, just an equal chance. Once again I want to point out that the government is not the only source of help for the disabled. More and more companies, churches, and private organizations are giving aid and even providing jobs and educational opportunities for the disabled.

We will do our best to bring you up-to-date information about new benefits made available. For a Wealth of Information on people with disabilities, visit Accessibility at the Library of Congress

If you have information you would like to get out please leave a comment below.

If you are disabled and having difficulty finding work suitable to your skill sets take a look here. You might be surprised to be able to start for free and at what you can earn from home.

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The Ferocious Army of the Disabled – Legal Rights, Equal Rights for All

Organizations that Help the Disabled Fight for Their Rights.

Most are not disability ‘rights’ organizations. They are charities funded to provide services to help the disabled and do not engage in advocacy and are a-political.

Image result for American Disabled for Attendant Programs TodayAmerican Disabled for Attendant Programs Today – ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom.

American Association on Intellectual & Developmental Disabilities –  Is an American non-profit professional organization 

concerned with intellectual disability and related developmental disabilities. AAIDD has members in the United States and more than 50 other countries.

American Association of People with Disabilities AAPD is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities.

American Coalition of Citizens with Disabilities A national  ACCD               consumer-led disability rights organization.

American Council of the Blind Strives to increase the independence, security, equality of opportunity, and quality of life for all blind and visually impaired people

American Diabetes Association Mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes

AFBEnables access, promote and deliver technological solutions, collaborate with the vision loss community, and provide resources that inform and enlight.

Association for Real Change To improve the quality of life for people who have a learning disability by supporting anyone who is involved in the planning or delivery of support and services

The Arc of the United StatesPromotes and protects the human rights of people with intellectual and developmental disabilities while actively supporting their full inclusion and participation in the community throughout their lifetimes.


Aspies For Freedom Is a solidarity and campaigning group that aimed at raising public awareness of the autism rights movement. The aim of Aspies For Freedom is to educate the public that the autism spectrum is not always a disability, and that there are advantages as well as disadvantages


Autism National Committee Is an American advocacy association of autistic people and their allies


Autism Network International An autistic-run self-help and advocacy organization for autistic people 


Autistic Self Advocacy Network Public policy advocacy, the development of autistic cultural activities, and leadership trainings for autistic self-advocates  providing information about autism, disability rights, and systems change to the public


Burton Blatt Institute – An organization that aims to advance civic, economic, and social participation of persons with disabilities in a global society


Canadian National Institute for the Blind – Aims to create a world of no limits for people who are blind or visually impaired. We mobilize leaders, advance understanding, and champion impactful policies and practices using research and data


Catalan Association for the Blind and Visually Impaired – Goal is to offer services to blind and visually impaired people to help improve their quality of life and to accomplish a better integration of the collective


Community Alliance for the Ethical Treatment of Youth – An advocacy group for people enrolled in residential treatment programs for at-risk teenagers


Center for Independent Living – Provides tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect


Council of Parent Attorneys and Advocates – Protecting the Legal and Civil Rights of Students with Disabilities 



CureSMA – Provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA (Spinal Muscle Atrophy)


Dementia Society of America – To enhance the quality of life for those living with Dementia, caregivers, and the community


Disabled American Veterans –  Empowering veterans to lead high-quality lives with respect and dignity.


Disabled Children’s Computer Group –  Promotes new computer technology  DCCG to assist children and adults with disabilities to speak, write, read, learn, and participate in a larger world


Disabled in Action – Organization committed to ending discrimination against people with disabilities


Disabled Peoples’ International – Human rights organization committed to the protection of the rights of people with disabilities and the promotion of their full and equal participation in society


Disabled People’s Organizations Australia – Promotes and advances the human rights and freedoms of all people with disability in Australia


Disabled Women’s Network Canada – National organization working to eliminate poverty, discrimination and violence against women with disabilities and Deaf women


Disability Rights Commission –An independent body established to stop discrimination and promote equality of opportunity for disabled people


Disability Rights Education & Defense Fund – Leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities


Enabling Unit – University College of Medical Sciences – Ensures affirmative action’s concerning persons with disabilities including students, nonteaching staff, faculty as well as patients at UCMS


Easter Seals – Helps people with disabilities, veterans & seniors live, learn, work and play.  Autism Services. Day Care. Accessibility Resources


Equal Employment Opportunity Commission – A federal agency that administers and enforces civil rights laws against workplace discrimination


FAIDD(Finnish Association on Intellectual & Developmental Disabilities) – Promotes good life, equality and participation for people with intellectual disabilities and others who need support with learning, understanding  and communicating


Galloway’s Society for the Blind – Provides a range of services to over 7000 Blind and Partially Sighted people


Handicap International – Aims to help disabled and vulnerable people in situations of poverty and exclusion, conflict and disaster


IDIRIYA – A not-for-profit registered humanitarian organization focusing on disability rights that fully understands disability related access issues that affect a wide range of people in day-to-day life that concerns even their safety and physical, mental, economical and social well being


Infinite Ability – University College of Medical Sciences – A special interest group on disability within the Medical Humanities Group of the University College of Medical Sciences 


International Disability and Development Consortium (IDDC) – Aims promote inclusive development. Inclusive development means respecting the full human rights of every person, acknowledging diversity, eradicating poverty and ensuring that all people are fully included and can actively participate in development processes and activities regardless of age, gender, disability, state of health, ethnic origin or any other characteristic


International Blind Sports Federation – Is in charge of a wide range of sports for athletes who are blind or partially sighted


International Ventilator Users Network –Mission is to enhance the lives and independence of home ventilator users and polio survivors through education, advocacy, research and networking


Landmine Survivors Network –Empowers individuals, families and communities affected by landmines to recover from trauma, reclaim their lives, and fulfill their rights


Latvian Association for Support of Disabled People –Supports the rights and interests of Latvian people with disabilities, provides transportation and other services, including education and employment consulting


L’Arche – Supports communities, through leadership structures, training, administrative or financial assistance depending on the local needs. Through meetings and other means the Federation facilitates the sharing of experiences and resources.


Learning Disabilities Association –Supports people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources


Little People of America –Provides support and information to people of short stature and their families


Mencap – A UK charity for people with a learning disability


Mental Disability Advocacy Center – The only charity using the law to advance the rights of people with mental health issues and intellectual disabilities worldwide


Mental Disability Rights International –  A nonprofit organization that unites 100 sponsor and affiliate grassroots groups with thousands of individual members to win human rights and alternatives for people labeled with psychiatric disabilities


Mind – Provides advice and support to empower anyone experiencing a mental health problem as well as campaigning to improve services, raise awareness, and to promote understanding


MindFreedom International – A nonprofit organization that unites 100 sponsor and affiliate grassroots groups with thousands of individual members to win human rights and alternatives for people labeled with psychiatric disabilities


Movement for the Intellectually Disabled of Singapore – One of the oldest and largest non-governmental organizations catering to the needs of persons with intellectual disability (PWIDs) in Singapore


MDA is leading the fight to free individuals and the families who love them from the harm of muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength, independence and life


Shapes national public policy for people with mental illness and their families and provides volunteer leaders with the tools, resources and skills necessary to save mental health in all states


National Association of the DeafThe nation’s premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America


The UK’s leading charity for autistic people and their families to help transform lives, change attitudes and create a society that works for autistic people


National Council on Disability – If you have a disability, learn how government programs and services can help you with daily life


National Down Syndrome Congress –  Is dedicated to an improved world for individuals with down syndrome


National Federation of the Blind –Believes in the full capacity of blind people, and has the power, influence, diversity, and determination to help transform our dreams into reality


National Spinal Cord Injury Association – Its mission is to provide active-lifestyle information, peer support and advocacy that empowers people living with spinal cord injuries and disorders to achieve their highest potential


Northern Ireland Deaf Youth Association –  The leading deaf youth charity in Northern Ireland, working to meet the current needs of deaf children and young people


Not Dead Yet –A national, grassroots disability rights group that opposes legalization of assisted suicide and euthanasia as deadly forms of discrimination


Paraplegic Center Peshawar – Physical, Occupational, Vocational and Psychosocial Rehabilitation, Community Re-integration, Wheel Chair accessibility  and minor home modifications, Participation in Sports /Games & Re-creational activities, Job Placement & Socio-economic support, of people with spinal cord injuries.


People with Disability Australia –A national disability rights, advocacy and representative organization that is made up of, led and governed by people with disability


Post-Polio Health International –Mission is to enhance the lives and independence of polio survivors and home ventilator users through Education, Advocacy, Research and Networking


The Royal Association for Disability Rights –An umbrella organization which works with and for disabled people to remove structural, economic and attitudinal barriers


The Royal National Institute of Blind People – Offers help and support for blind and partially sighted people. This can be anything from practical and emotional support, campaigning for change, reading services and products


The Royal National Institute for Deaf people – The largest charity working to change the world for the UK’s nine million deaf and hard-of-hearing people


Rehabilitation International –  Is a network of organizations and individuals whose aim is to implement and improve disability rights worldwide


Spastic Society of Gurgaon –Provides care and services for Cerebral Palsy in Gurgaon


Special Olympics – Their mission is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities


The mission of TASH to eliminate physical  and social obstacles that prevent equity, diversity and quality of life for children and adults with disabilities


Tourette Association of America –The premier national non-profit organization working to make life better for all people affected by Tourette and Tic Disorders


United Cerebral Palsy –Promotes the independence, productivity, and full citizenship of people with cerebral palsy, intellectual, and developmental disabilities, and other conditions through an affiliate network.


United Spinal Association –A nonprofit membership organization dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals


Women With Disabilities Australia –  Is a national voice for the needs and rights of women with disabilities and a national force to improve the lives and life chances of women with disabilities.


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United States Social Security Disabililty Income Benefits Information

Related imageThere is a wide range of Social Security Disability Income Benefits available through the Security Administration . Of course there are certain qualifications that must be met before someone is able to get paid. Click Here to view the booklet prepared by the Social Security Administration to clarify the rules and give you direction.

If you don’t find what you need please leave us a comment below and we will try to find it for you.

This site was created in minutes using the BEST AFFILIATE MARKETING TOOL IN THE WORLD… The Wealthy Affiliate program. Try it for free!

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Special Needs People Discussion and Comments from Everyone

Special Needs People Discussion and Comments

So here we are, trying to gather up some steam to make this more than just a passing thought. I has always been my attempt here to not only do some quick education on this subject of Special Needs People, but to engage readers, both of normal and disabled status to get involved in thought provoking discussions that may help everyone to better understand the situations and needs of the disabled. I want your inputs as to what you would like to see changed to make life and interactions better and more healthy for all of us. 

Looks like a good burger

He prays for you!

As a step-father to a wonderful young man, named Little David, I have learned a lot about needs of the disabled and how to best help but I have also learned that I only see the tip of the iceberg. There is a lot more to be learned both by the non-disabled as well as the disabled. 

I know that this audience is made up of people from both groups. I also know that there are subjects that need to be addressed. As always, these are most effectively discussed as a team. I personally think that will be good for all and that we may be able to get some real improvements made.

I would like to invite you all to give this some thought and to make comments and/or suggestions here on this page. I am hoping that with your help, we can open both the eyes blind to the needs of these special people and that we can create an environment of mutual learning for everyone’s benefit.

Please join us won’t you! Comment section is just below.

THANK YOU!

Big David

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