Special Needs People

Our Goals Here On This Site

Our goals here are to broaden the spectrum of understanding and the need for ever-improving conditions for the lives of people with disabilities, our Special Needs People.

We will present a great deal of information about private, public, and governmental policies and benefits that will hopefully help these people to enjoy their lives more. We will help them with finding funds for education, housing, transportation, proper medical care, and more. We will, as always defend them and help to protect their rights.

The Webster’s Definition of Disabled People

Per Webster’s it means: Incapacitated by illness, injury, or wounds.  Personally I would argue not all people with a disability are “incapacitated”, their disability just causes them to have to do things differently.

For example:

I am disabled when it comes to woodworking. I follow the rules: Measure it twice, cut it once. Sounds simple but I invariably measure it twice, cut it once, throw it away and repeat.

My car was disabled in Cincinnati on a recent vacation. 

Somehow this descriptive word “disabled” illustrates a lack of understanding in its impact on Special Needs People.

These precious people are just like us. They have a multitude of human traits that define them as unique individuals. They think, they grow, they bleed when cut. They have families, they have ups and downs, they feel pain when they are injured or mistreated, and they have bad hair days just as we do. They are just people with some “Special Needs”.

Time to Connect  

Here I am going to just run through some thoughts and experiences with my special friends so that you will develop a greater understanding of who we are talking about.

First, just think about the disabled friend or relative you know best. Do they have feelings, dreams, desires, goals just like those of us who are blessed with good health? OF COURSE, THEY DO!

If you don’t have a special needs friend, go get one. YOU will be blessed. Treat them like normal. I have found, without exception that this is their preferred choice in interaction with you. Let’s delve into this a bit and see how we might kill two birds with one stone by understanding them better and understanding our reaction to them.

Are They Contagious?

Their conditions are  not contagious. The only thing “Contagious” about them is the invincible outlook they have on a life that has chosen them to carry some unusual and strenuous burdens.

They are often very lonely because we often act, either consciously or unconsciously, as if they are contagious. They have the same set of needs for human touch, thoughtfulness, love, friendship, and courtesy just like we all expect. 

      Not guilty you say?

Let me ask you this… when a person with a disability holds their hand out to shake yours, what is (hopefully, what was) your first internal reaction? Most people are worried a bit, especially by physical contact with them. You can admit this to yourself, even if you never gave it a conscious thought before.

I had a mental “ouch” when I realized that I unconsciously did this. It was a personal fault of my own, due to lack of understanding and education about them until I was blessed with a little special little boy who came into my life.  This little fellow was diagnosed with SMA (spinal muscle atrophy). I always wondered how the parents of a child with a disability could say “we are just so blessed by…”. I found out through this little boy named David.

Let’s Meet this SMA Kid!

Little David, like most children, has a heart made of gold. He laughs, plays as much as SMA allows. He cry’s when he is physically or spiritually hurt. You know, just like any other “normal” human.

 

Adjust Your Visual Perception

I suggest that you try to look at them with a different perspective. I mean to see what is really there. Little David and other people with a disability have all the same trials and tribulations you have. They live their lives with a physical burden that would bring tears to our eyes if we tried to envision ourselves or a loved one in this same situation. So, my recommendation for you is to not feel guilty. Just try to see them as “normal”.

Shake their hand, give them a hug. They will be thrilled to see the wall go down. They will be delighted to be treated normally. Oh yea, you will be delighted as well. You see they are not contagious physically, just spiritually.

A Journey with My Friend Mike

I met Mike when an acquaintance of mine became his caregiver. Having no real contact or dealings with a person with a disability before this I wondered how she and so many other caregivers for Special Needs people, could handle this. It just has to be a trying and stressful job.

Do they feel strange? Are they able to think and feel as I do? The questions like these go on and on. Fortunately for us with normal health, most of the people with disabilities I know have a special skill set that is designed out of necessity to help them make us feel “OK” with them. Imagine that!

A Smile and Handshake

My friend Mike was my first real friend with disabilities. I met him when he was about 40. He was the victim of Polio at the age of 9. He would occasionally get that shallow smile and a faraway look in his eyes when he would talk about being able to walk and run like other children. Then he would do a little time travel through his early years but always quickly returned to the present, the place where he dwelt and had to work a lot harder than me to just get by.

He would always have a smile on his face. His hand was always out first. He never faltered in this. Our ease of interaction was because of HIS behavior, not mine. It was the stake in the ground so to speak marking the beginning of our friendship.

An Example of Their Goals

Mike was like many, if not most of the people with disabilities  I have come to know over the years, strong and persistent. His greatest goal was to become an attorney. He chose this so that he could help other People with Special Needs  by getting them the facilities and benefits they needed but  were often denied.

Mike bought me a sailplane ride

A simple ramp here and there for wheelchairs or an accessible fire escape designed for the abilities of people with disabilities. 

For example, when Mike was taking the Arizona Bar exam, he was forced to use the restroom and because it was not set up for Special Needs People, his wheelchair became jammed in a stall. No one heard his shouts for help.

It wasn’t long before some thoughtful, caring individual who was administering the exam felt it necessary to disqualify Mike from finishing the exam. How wonderfully fair (tongue-in-cheek) the system was then.

Mike was undaunted by this. He had increasing health issues which prevented him from becoming an attorney, but he still became a pioneer in the country’s need to change the laws and provisions for Special Needs People.

He charged ahead in the quest to provide everything that he and others needed so that they were safe and set free by a society that up to this time just wanted to keep the them in a dark room with the door closed. You see, it was easier for most people to deal with the people with disabilities if they didn’t see them or hear them, might less touch them or treat them with even a modicum of human respect. Thankfully, when Mike passed away, my journey was not done.

So Why did I tell you this? 

The simple answer is because YOU needed it. I needed this experience as well. You need to roll this around in your mind to get a good grip on it.

REDEMPTION- The action of saving or being saved from sin, error, mistake, or evil. 

 A few years after my friend Mike passed away, I was given another opportunity to reach into the world of people with disabilities. I got married a couple of years later and that brought a surprise to me that has permanently changed my life for the better. This is when Little David and I became good friends. He is commonly known as Little David so that everyone can clearly define who they are talking about.

Little David took me under his wing, and just like my friend Mike did years earlier. Even though he was not aware of it, Little David began to knock down the remaining barriers that were keeping me from what seems to be God’s plan for my life.  What a wonderful gift! Almost immediately, the disability and the wheelchair disappeared. Only the person remained. 

Since my marriage to his mother in 2010 and to this very day Little David (who I might add is not so little now at 16) has continued to amaze me with seemingly innate abilities to deal with his world just like Mike did.

Little David was my final proof that these people with disabilities are indeed special. He makes straight A’s in school, even in the advanced classes. Has the maturity and clarity of thought of a much older young man. He never gives up. He always gives what I feel is a gargantuan effort to do the best he can in every situation. He is tuff! 

David is fiercely competitive. He “rules” when playing in his on-line video games. If he can barely lift a 5-lb weight, he will ask for a 6-lb weight. He always stretches his abilities to become smarter and stronger. I have asked his gaming buddies and they all say he is the toughest competitor out of them all. I agree on all points.

Little David has had 3 terrible surgeries.

One to straighten out his legs. That required cutting both femurs and having them straightened and anchored in place with hardware until the bones healed. He finally had the hardware removed and keeps them in a bag as trophy’s.

The next surgery was for scoliosis, another horrendous surgery where the surgeons lay open the back of the patient and place several pounds of permanent hardware around the entire spine so that he can sit up straight without pain.

The final surgery came last year when he had to have lung surgery to relieve pneumonia symptoms with an array of drain tubing drilled through his chest and sides, directly into his lungs.

As you can see it was definitely painful yet he never whines. It is just his life. He still lives it to the maximum.

Little David, like Mike and most “Special Needs People”, have this energy or spirit that is hard for me to adequately describe. They just never lose focus. They never give up!

If you are blessed with knowing one of these special  people, I am sure you love them like we do. You cannot avoid the respect they deserve to get.

Hopefully I have been able to give you a better idea of why these special people are indeed special. I hope that I have been able to stir your interest in this fantastic group of people, young and old, civilian and veteran and our responsibility to give them a hand up and cheer them on to success in normal living.

Please share comments below and if you wish a photo and story about your special friend or yourself in the comments section below. Hopefully this site will be a step for greater level of understanding.

Please Bookmark us, there is more to follow.

Thank You!

Be the coolest  – Find Out What WA REALLY Is!

 

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Careful Planning – Saving Your Life in Disasters

We Want to Survive Life’s Disasters 

run for your life

California wild fires and Alaska earthquake

We all know just how frightening disasters like wild fires, floods, storms, and earthquakes can be. Horrible photos are thrown in front of us nearly daily to keep the pain and suffering on our minds. Now lets really scare ourselves by adding in the possibilities of things like war, terrorism, plane crashes, and a multitude of other disastrous things that happen which in moments put our lives in peril. This is in fact a scary world that we live in.

yikes, they might leave me

Worrisome to say the least

While you ponder these things, to try to imagine how much more frightening these disasters could be if they involved you, your family, or friends. The last step into the disaster mental minefield is to imagine yourself in a wheelchair, or if you were perhaps blind, elderly, or really disabled by any physical problems that would put you at the mercy of the disaster at hand. These are terrible situations that you could not handle without the help of other people. That is why WE are here!

I need a tranquilizer right now myself from just talking about it. Disasters are a horror that can face us all at any time, but the danger is extremely magnified for people with disabilities. Thorough planning and preparation mitigates the problems substantially.

OK, Let’s Calm Ourselves by Doing Smart Things First   

no where to go

the Dead End

There are standard procedures and guides for various situations that need to be read by all of us. Once these sources are studied intensely, put to paper, then they need to be practiced until they become 2nd nature. By intense, sincere PRACTICE lives can be saved and associated risks can be minimized because of this well thought out careful planning. If no adequate planning has been done, when the emergency arises, the panic mode sets in and it is  rapidly followed by poor and uneducated decisions. These are the times when many lives are needlessly lost.   Planning ahead is of tremendous importance. Without good planning you could end up in a dead end alley. Not a good place to spend the rest of your disaster.

There is yet an additional insidious danger lurking just out of sight. Today people, especially those who do not live in a 3rd world country, feel so “safe” in the world around them, that making plans as to how they should respond to any disaster just never enters their minds until it’s too late! Then the danger to life and limb is compounded all the more.

ESSENTIAL PLANNING

Whether you are of normal health and capabilities or you are a person with disabilities, PLANNING AHEAD IS ABSOLUTELY ESSENTIAL. When careful planning takes place and we follow the plans that we come up with, the risk of the threat to life is greatly reduced because we have prepared for and practiced for just such disasters and now we  know just what to do to be as safe and prepared as possible.

How To Make Plans To Save Lives  

The person that wants to be prepared should begin by seeking the advice of people in their support group, survival publications and local authorities on local emergency planning. Another set of eyes will always find the things we have missed in our personal planning. This in itself will save lives.

When you begin your plan, write it out. I suggest you do so with double spacing, a thick pad of paper, and even some permanent waterproof colored markers like sharpies.  For example you might mark a danger zone in red on your notes and maps (don’t mark up your maps until the end.

Now while your coffee is warm, the air is clean, you can take your time and make some very good plans. Let’s get started.

By the way, I am not a special forces guy so if you see mistakes or have some ideas you would like to share, please do so in the comment section below. I would love to hear from you!

General Planning Guidelines You should Follow

When you have planned for as many things as you can think of, and when you have mapped your escape routes and rendezvous points ( on scratch paper, mark your maps last) and you are positive there are no mistakes, you should give copies to anyone who you feel might be able to help in case of an emergency. Then all parties should review the plan again together. It is better now than later.

If you are fortunate enough to get a Personal Locator Beacon (GPS) be sure to follow the instructions in the paperwork to get it registered so it will be working before you need it. Be sure to verify this too.

I also suggest double zip lock bagging your plans, the PLB’s instructions, and maps for the best escape routes and alternate routes along with your collection of emergency numbers and numbers of friends, neighbors, and family members should be stored with the plans and maps to protect it from the elements. Try to keep all essential items close to the door you plan to lock last.

Sometimes people have only minutes to safely get out of the house, apartment, office, and neighborhood. Avoid any form of mass transit. They sometimes have no idea as to what to do or where to go like most people. Trains and subways are scary too. Remember I said CAREFUL PLANNING. Do your best to leave no details out.

Be very careful of human contacts along your way. Hoard everything because it is up to YOU to protect yourself and your family. I would use the 24 foot rule at minimum. I saw some armed police officer training where a guy with a practice knife covered 24 feet before the officer could draw his weapon. Good thing it was a practice knife.

Keep your thumbs on the trigger of your pepper spray when any strangers are near, especially if you ask them to stay back and they just keep coming at you. Almost anyone can and will take from you your stuff or your lives. You do watch TV right?

It is sometimes argued that people with disabilities should plan to turn their dwelling into a little fort. I have mixed emotions about this. Unfortunately sometimes it is not even an option. You know if it is underwater, on fire, or just missing, I wouldn’t bother with it.  Seriously though, it deserves careful consideration if you or a loved one has a disability. You will need a fallback plan and regardless, you will no doubt still need these things below to be safe no matter where you are.

Put Modern Technology to Work to Save You and Your Family

Personal Locator Beacons = Security

One of the things I suggest as an extra safety feature in your planning is to add a PLB (Personal Locator Beacon) to your survival tools.  If you are in a disaster of any kind you can activate your PLB to help the first responders to get you as quickly as possible.  Yes, you have done all of your planning in detail but when we least expect it, all of our paths to safety might not be available so PLBs are an ideal contingency plan. They will all function inside your double bagged zip locked quart sized bags that you have your papers, plans and maps in, not the bags with aluminum foil protecting your other electronics.

What the HECK is an EMP?

Being a techno-geek I Googled and compared this short explanation to Wiki for you:

Telescope photograhy of a solar flare

An electromagnetic pulse (EMP) is a short burst of electromagnetic energy interference caused by an abrupt and rapid acceleration of charged particles, which can damage electronic components by short-circuiting them. An EMP can contain many energy components of the electromagnetic spectrum, from the very low frequency waves to the ultraviolet wavelengths. One very common cause of EMP is lightning strikes, which supercharge ions in the atmosphere and cause electricity in the power lines to

you know the drill...

Smores anyone?

surge. The not so common cause is a large solar flare striking the earth. An EMP as an act of war is when a nuclear device is detonated several hundred miles up in the atmosphere. In any event if you see one of these things, don’t worry… it’s too late.

 

Until the emergency actually happens, I would also recommend that you keep your electronic devices tightly wrapped in a baggie, then a thick layer of brown paper bag, followed by at least a double layer of aluminum foil, duct taped tightly, and lastly followed by another zip lock bag with the seal duct taped securely.

“Lookie here Bubba, we got ourselves a miniature Faraday Cage. Well ain’t that cute!”

This is to protect these devices from an EMP whether it comes from lightening, a weapon of war or a large solar flare makes no difference. Wrap and tape the foil carefully so that not even a pin hole exists where the pulse can kill anything with electronics in it. You have a lot to take with you anyway so spares are not logical. Besides, the spares will get zapped as well. Protect your stuff. If you have a second or old phone this is a good item to add to this shielded bag. You can at least play games on it. (see entertainment items for children)

To illustrate just how important this aspect of your survival planning is, just know that nearly all aircraft have automatically activated ELTs (Emergency Locator Transmitters) to help searchers looking for a downed aircraft to find it quickly as well.

GPS vs. Cellular PLBs

This same technology will work for you. The areas you might be in, for example the downtown area of a large metropolitan city will often require a higher quality and higher powered transmitter, just like if you are way out in the country camping. Your average  range of these items is generally limited to line of sight to those who might be receiving your emergency signal, especially if your signal is cellular. The exception to this problem  is registered GPS PLBs which use satellite signals to find you. Like any electronics we buy, you pretty much get what you pay for so if you can afford it, this is not the time to look for bargain basement prices.

I have seen PLBs that are no more than cell phone apps. Ever lose your cell connection or even kill your phone when you accidentally drop it into the toilet? I personally prefer a registered GPS unit, that is buoyant hence water-proof. One that is rugged and highly rated. You can easily spend over $1,000.00 for a high quality PLB but this is usually not necessary.  I have also seen numerous units that are priced less than $100.00 although I don’t know how I would feel with a bottom of the line PLB in an emergency.

The unit I chose was found on Amazon who has a great selection of units with lots of bells and whistles, some of which you just don’t need to spend the money on. The price for my PLB is in the bottom 25 or so percent of all the units I looked at. I love the security this PLB offers and you don’t need to be rich to get one. I think the price is a bargain since I prefer to survive as long as is possible! The  ACR PLB-375 ResQLink+ 406 Buoyant Personal Locator Beacon (the yellow unit shown above) is just right for me and trust me, we are not rich. However when the water is rising or smoke is billowing I don’t want to die with the savings I made on that el-cheapo PLB still in my wallet.

Your Bug-Out-Bag 

What Do You Need In A Survival Kit?

At a minimum, you should have the basic supplies listed below. Almost everything has a convenient link so you can find it quickly. I use these items myself and have found them to be reasonably priced and of good quality.

Water: 1 gal. per person, per day (3-day supply if evacuate, 2-week supply for home). Water jugs make great area lighting. Just use one of your flashlights, tape it to the spout or the side, pointing into the water and say Wow!.

Food: non-perishable, well sealed, individually wrapped, energy bars that won’t melt, etc.(3-day supply for evacuation, 2-week supply for home). Not exactly the food your Momma wants you to eat when it comes to nutrition but they will keep you alive. A variety keeps you from getting bored. Homemade trail mix is a favorite of mine.

Pocket Flashlights: Flashlights 2 in case one wears out or gets damaged and put one in your foil sealed bag. Not the little tiny flashlights. The ones I linked to I use daily.
NOAA Weather Radio – Battery-powered, solar panel or hand crank to recharge at night or on rainy days radio   
Extra batteries: For the flashlights you can use 3 good AAA batteries each (make sure you have spare batteries for everything). I recommend this  set of 4, 18650, 3.7v lithium rechargeable batteries that come with their own charger. They produce a brighter light that I feel lasts about 3 times as long as the AAA’s do.
First aid Kit: Study First Aid Kits carefully. You probably don’t need a full surgical ER in your backpack. I chose the one linked right above. It has a nice sturdy case and 250 items. OSHA rated for 50 persons. Let me explain, first of all this is a GREAT PRICE. Secondly you probably want extra stuff in case you (being the Good Samaritan that you are) decide to help someone else.

Oh yea, a nice thick piece of leather to bite on cause ‘dis might hurt a little. (you know, like in the cowboy movies) you used to watch TV, right?

Multipurpose tool: What is a multipurpose tool? You know one of those boyscout type knives with some of everything folded in. Get a good one with as many tools on it as your can afford. If you are alone 1 is good otherwise 1 per adult. These are quality Gerber tools.
Cell phone with chargers: I suggest a separate solar charged battery. Most of these will charge 2 items at once. They will run your laptop or cell phones, or charge your 2-way radios. This is rated at 50,000 mah (milli-amp hours) that is normal human terms means it will last thru the ball game and the sitcom for the family. The solar panel is built right in. All of this for less than $27.00. Love it.
Emergency blanket: These emergency blankets are great.  These are  big enough for 2 people to share. (ten per pack). If you are in a warm climate these work by themselves but are not so comfortable to lay on all night. I love my sleeping bag but in cold or wet weather you can put your sleeping bag or blankets inside the emergency blanket. You’ll stay toasty and dry.
General items like hearing aids with extra batteries, spare glasses, contact lenses, syringes, tourniquets, rope, etc. I use 550 paracord for most needs and it doesn’t take up much space. This stuff is strong, durable, and bright orange so you can see it and you don’t clothesline yourself or others. 100 feet.
Two-way radios  
Cheap Surgical type masks to protect you from breathing smoke or dust
Eye Protection: A pair of cheap flexible goggles that won’t break easily (like the ones you use in the yard or garage) for each person
Rain gear: A 5-pack of longer hooded lightweight raincoats 
Sleeping bags 
A few large canisters of pepper spray
Work gloves  6-pack of nylon, nitrile coated gloves

Inflatable pillows: These take up little space and are cheap but the bottom line is that some extra clothes or towels work well too. Even a roll of news papers with a rubber ban or shoelace to hold the shape will work.

Large roll of aluminum foil: Aluminum to protect your stuff on  the get-away or cover your windows at home so you can have a better chance of making people think you are not home. It can protect your electronics at home too. Even that 80 inch 4k TV you just bought. I would just take a portion of foil on the road if walking. Leave the TV.

Backpacks: Backpacks are almost a necessity. One or more can  even be attached to a wheelchair. This is an item that you really don’t need a brand name just to get the price higher or that super-cool logo. Adults should plan on a full size pack. If there are children, a small child can carry a lot of essentials like underwear, socks, and toys.

SAFETY Whistles Safety Whistles at least 1 per person. Make sure the kids have one and know how and when to use it. This one is not a toy to drive adults crazy with. They should be worn at all times by everyone in your family. If a person loses sight of a family member they start blowing the whistle to find one another.

Copies of personal documents  These should include medication list and important medical information, driver’s license or state ID with photo,  proof of address, deed/lease to home, passports, birth certificates, insurance policies, copies of you evacuation maps, clearly marked routes and rendezvous locations. Keep these and anything else you think of in the double zip locked bag mentioned above.
Sanitation and personal hygiene items. I’ll let you figure your personal needs here. Toilet paper and lightly scented wipes at minimum. Do everyone a favor, take a stick of deodorant too. Tooth brushes, flossers will feel great. Use baking soda for toothpaste.
Medications: (7-day supply prescribed if on the move or 2 weeks at home) and additional medical items if you need them and your First Aid kit doesn’t contain them  I suggest you add aspirin (over 25 years old ONLY), tylenol, or Ibuprophen if it is safe for you. a bottle of isopropyl alcohol and a bottle of hydrogen peroxide.
Extra Cash: Strictly up to you again. I can only recommend coins and smaller denominations of paper money. Precious metals are your best bet. Be prepared to barter. You can’t eat money or gold so in just a few days money will basically be worthless. Booze and bullets are the prepper’s best bartering currency, even if you don’t use either will be almost as valuable as cigarettes. Never barter your food away.
Games and activities for children  I just make mine stand guard for entertainment.
Extra clothing, hat, gloves  and sturdy shoes. Decide by climate.
Cloth Towels: even a couple of rolls of paper towels. They all can double as wound dressing held on by duct tape in emergencies.
Pet supplies (collar, leash, ID, food, carrier, bowl)
Baby supplies (bottles, formula, baby food, diapers) You can make them stand guard  or crawl the camp perimeter if they aren’t walking yet.
Extra set of car keys and house keys (spread between 2 adults). If your keys have an electronic entry or starter button, you should wrap them in aluminum foil.
Matches In a sealed pill bottle. I just carry 2 Bic lighters.
Paper for notes and eye-catching posted messages to friends. A few (8.5 x 11.0) pads of bright writing paper and perhaps a pack of day-glow orange paper to help people who may be looking for you to find you easier. Note on your plans what color rescuers will be looking for when they search for you. You may not want to write your plans and post them publicly, but if a friend knows you have blank day-glow orange trail markers they can follow the route you took. 
Several rolls of duct tape Enough said   
A package of nails to hang your trail markers or use them to attach your tent rope to trees, etc..
Pets should be tied to your foot, never outside alone. Some folks say they are tasty if one is hungry enough. Besides that also makes for a good proximity alarm.
Plastic sheeting: A 10′ by 20′ package of at least 20 mil plastic construction or painting sheeting. Use for many things including shelter or even gathering water. Leave it in the bag until you need it.
A signal mirror: This can be found a most any surplus store but a signal mirror can easily be made by taking an old compact mirror out of the case, drill about a 3/8″ hole in the center of the case where the mirror was. Then push the mirror back in and use a pencil or marker to mark a circle on the back of the mirror. Next you can take the mirror out again and scrape the reflector off of the mirror inside the circle you marked. Hot glue the mirror back in. Voila! you now own a signal mirror complete with pink carrying case. Guaranteed the one from the surplus store won’t be so fancy. Just look through the hole with as bright a light as you have available hitting the mirror. You will easily be able to see the point in the distance where you need to signal to. Whew!
Household liquid bleach
Entertainment items like playing cards or dice You can gamble like there is no tomorrow (I know, not funny). The money is worthless by the time you get bored enough to gamble.
Weapons: Solely At your discretion for food or self-defense. NEVER show your weapons. Someone ALWAYS wants your stuff and they often have better weapons than you. Many can be made on the trail as you leave town if you feel they are necessary. That pepper spray works well. I’ll stick to the guns and pepper spray. Your choice.

OK, Follow the plan as closely as possible.This list sounds like a lot of stuff to carry around but in the event you need it you will wish you had not just skipped that item. Of course you can use some of the items as dual-purpose items and perhaps save a bit.

 

 

As I said earlier, I always love hearing from you. If you have comments on how I can make this better for my readers, PLEASE let me know in the comment section below.

Click Here for the ⇒ FREE OFFER where you can find out what WA is doing for folks who want or need to work from home. (hint: I am in my jammies right now!)

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What is SMA?

A Brief Rundown of SMA

In this area I will give you a quick, high-level fly-by of the situation Little David is in from first diagnosis to where he is today in his journey with SMA and the treatments he has had along the way.

SMA is an abbreviation for Spinal Muscle Atrophy.

SMA is a neurological disorder. It is not contagious. SMA is a genetic disease that attacks nerve cells called motor neurons in the spinal cord and the brainstem. When the motor neurons die, this cuts off communication to the muscles which then get progressively weaker and atrophy due to lack of use. Of course, being a genetic disease, SMA runs in families. As you can imagine, atrophied muscles affect walking, crawling, swallowing, breathing, head and neck control. The level of muscle control varies due to a number of factors from the age of onset to the level of intensity of the disorder. There are basically 4 primary types of the disorder although, like most disorders, there are variances but we can pretty accurately divide the disorder into 4 basic types.

Types of SMA
Type I Type I is a severe form of SMA that is evident at birth or within the first few months of life. Infants diagnosed with Type I are developmentally delayed. Most are unable to support their head or sit unassisted. Children with this type often have breathing and swallowing problems that often lead to choking or gagging.
Type II Type II is characterized by muscle weakness that develops in children between ages 6 and 12 months. Children with type II can sit without support, although they may need help getting to a seated position. Individuals with this type of SMA cannot stand or walk unaided.
Type III Type III has somewhat milder features and usually develop between early childhood and adolescence. Individuals with type III  can usually stand and walk unaided. Most of the time walking and climbing stairs may become increasingly difficult. Many affected individuals will require wheelchair assistance later in life.
Type IV Type IV often occurs after age 30. People with type IV usually experience mild to moderate muscle weakness, tremors, twitching, or mild breathing problems. Usually, the muscles close to the center of the body, such as the upper arms and legs, are affected.

Little David is basically in the Type III range. He was able to walk, although unevenly, at an early age but by about the age of 4 he just let go of his little walker and sat down.

Spinal Muscle Atrophy (SMA) Causes a High Infant Mortality Rate

SMA is the leading heritable cause of infant mortality worldwide. It is a neurodegenerative disorder that presents as progressive muscle wasting and loss of motor function. As motor nerves are located in the spinal cord, a vast decrease in muscle control for several activities (such as breathing, walking, head and neck control, swallowing) occurs. SMA is an autosomal recessive disorder caused by deletion of the survival motor neuron gene 1 (SMN1).

SMA Facts

  • 1 in 6,000 births is an SMA baby
  • 1 in 40 adults is a carrier of the gene mutation that causes SMA
  • The child of 2 carriers has a 1-in-4 chance of having SMA
  • ​7.5 million Americans are carriers
  • There is now an FDA-approved drug for SMA called Spinraza created by a wonderful company called Biogen.

Over the last few years there has been a lot of promising research into finding a Cure for SMA. Little David is in the first year of his treatment. He is still disabled but says he can feel a small increase in his physical strength. He says he gets the urge to stand up but at least at this point is still too weak.

  

Comments on SMA article

If you have SMA or a friend, a loved one has SMA  please leave us your thoughts below.  If you found this interesting, or even way out in left field, Please comment below. We All benefit from every comment or suggestion and it only takes a minute to let us know what YOU think. Thank You!

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Health Through Nutrition – Keep Your Body Healthy & Your Mind Sharp

Get Your Exact Nutrients the Modern Way

Photo by Angel Sinigersky on Unsplash

Everything that Tastes Good is Bad for Me 

Everyone wants to be healthy. I can’t think of anyone who doesn’t love tasty food, treats, drinks, or deserts. In fact, it is obvious that almost all of us would like to eat our favorite junk food any time and all the time. Wouldn’t it be wonderful not have to worry about the weight gain and the real junk, the poisons in our processed food that can ruin our health.

OK, so now we are not only hungry but we’re depressed too. The bottom line is that the laws of nature just can’t be changed and if we want to get healthy and stay healthy we have rules to follow. The basic smart nutrition diet is good for all people, of all ages. 

(Photo by Dicky Jiang)

You Just Eat What I Put On Your plate – You’re Lucky to Have Food!

To get a good understanding of this nutritional  what is good for me or Bad for me. Trust me on this, it is not your fault and here is why:

One hundred years ago, no one worried about what they ate. No one ever told them how devastating it was to their health and lifespan to load up on carbohydrates, sugars, and most grains. Highly processed foods had not even hit the market yet. High sugar fruits were seen as nourishing so the more the better, right?

Today moderation has started to settle in and most of us who are concerned with our health have realized that we must moderate everything that goes into our bodies. 

The Lifespan of 20th Century People

The average worldwide lifespan in the early 1900’s was around 31 years. It was a bit longer for people that lived in the U.S., primarily because of better nutrition and more sanitary living conditions. At that time men who lived in the U.S. men had a life expectancy of about 46 and women approximately 48. The current the worldwide average lifespan is now approximately 70, and in the U.S., the average lifespan has increased to 76 for men and 81 for women.

Nutrition Deficient Food – The Reason for Bad Nutrition

Poor Science and No Nutritional Education

Poor sanitation and hygiene were viewed as the root of all disease, and the solution was sterilizing food to get rid of bacteria, mold, and toxins. Rice was polished, and other grains were milled to eliminate husks. Sterilizing milk with heat destroyed vitamin C, and rates of scurvy. Bleeding gums and fatigue are common symptoms of scurvy and they increased among children in affluent families. But, despite prolonging shelf life, there were some harmful consequences, unknown at the time.

Poor Farming Practices

photo by Andreas Selter

To compound the issue, even when people were eating what appeared to be a good diet, the soil in which the food was grown continued to have a lower nutritional effect on crops grown. So, vegetables in 1900 were less nutritional than say 1800. The lack of sound growing practices, like crop rotation, basically killed much of our farmlands. That trend is changing but the damage is already done in many areas. Lush green farmland has sadly turned into unusable and basically unrecoverable vast desert land where few if any nutritious foods can be grown. The nutritional value of food affects every living creature. Humans suffer nutritionally from two sides. Not only is our food less nutritional, but also the food our protein animals consume has taken a major nutritional hit as well.

The Next Attack on Our Nutrition – Processed Food  

The practice of highly processed food that came along only compounded the issue. Most people still think that if it looks like cheese and has the word “cheese” anywhere on the label, it’s cheese.  Unfortunately, a lot of the “cheese” in the dairy department is, if you look carefully at the packaging, merely labeled “Processed Cheese Food” and is net even cheese. It is basically just colored, salted, coagulated, fat that is skimmed off in the process of making other non-nutritious quasi-food. You are better off with any natural cheese. It is not just a dairy issue though. There are lots of foods for example that contain artificial trans fats (or trans fatty acids) are created in an industrial process that adds hydrogen to liquid vegetable oils to make them more solid. The primary dietary source for trans fats in processed food is “partially hydrogenated oils.” or “fully hydrogenated fat”. Bad stuff for the heart among other scary stuff. Some say it is more dangerous than cigarettes!

Take a quick look at this old ad from the 1920’s.  

You can see the almost “magical” way  this “vitamin rich” candy was touted as an energizing health food.

The discovery of vitamins and the fact that they are good for us has fueled a belief that if you want to be healthier you just need more vitamins and minerals. This obsession with supplements began just as soon as the marketers discovered that people believed what they saw and read. People back then believed that if these wonder-foods are good for the health, more of them must means people would get more healthy.

No Government Watchdog Remember, there were No “Truth in Advertising” laws, No content labels, No warnings, and that left people to believe the advertisements or word of mouth and to hope for the best. In fact, the advertisers had a heyday back in the early 1900’s because they could sell anything and basically no one was aware of the devastating effect eating poorly had on their health.

At the beginning of the 20th century food was only seen as having 3 important nutrients: protein, carbohydrates, and fat. A few years ago the FDA (Food and Drug Administration) published a food pyramid chart that is to this day still upside down. These days the FDA is responsible for taking action against any adulterated or misbranded dietary supplement product but only After it reaches the marketIt seems to me that this should happen BEFORE it reaches market.

The Start of the Supplement Craze

The initial vitamin discovery spawned various products, such as Yeast Vitamine, Double Strength Yeast and Iron Concentrate, and Super Vitamins. They typically contained “vitamin B” (individual B vitamins had not been identified yet) from yeast and various other ingredients.

Vitamins and minerals are still both in much lower quantities in our food than even 50 years ago. Our knowledge of real nutrition has increased substantially yet most people are unaware that vitamin and mineral supplements are necessary for optimum health.

Essential Vitamins

In the early 1900’s everyone, including the experts thought there were only 3 or 4 vitamins and that you could still get them and all the minerals you want from your food. Wrong!

Today there are 13 vitamins essential to our health

Vitamin A Is a fat-soluble vitamin that is naturally present in many foods and is important for normal vision, the immune system, and reproduction. It also helps the heart, lungs, kidneys, and other organs work properly. Too much vitamin A can kill you!
Vitamin B1 Thiamine Helps to prevent damage to nerves which can lead to paralysis. The processing of grains destroyed vital B vitamins and led to higher incidence of two of the era’s common diseases: A deficiency can cause pellagra and beriberi.
Vitamin B2 Riboflavin Plays major roles in energy production; cellular function, growth, and development; and metabolism of fats, drugs, and steroids
Vitamin B3 Niacin Prevents a deficiency of niacin, whose symptoms include sores and delusions.
Pantothenic    Acid Animals require this to synthesize coenzyme-A (CoA), as well as to synthesize and metabolize proteins, carbohydrates, and fats
Biotin Is found in small amounts in many foods such as eggs, milk, or bananas and is commonly used for hair loss, brittle nails, nerve damage, and many other conditions
Vitamin B6 Pyridoxine Plays an important role in the body. It is needed to maintain the health of nerves, skin, and red blood cells. It has been used to prevent or treat a certain nerve disorder (peripheral neuropathy) caused by certain medications (such as isoniazid).
Folic Acid Helps your body produce and maintain new cells and helps prevent changes to DNA that may lead to cancer. It is used to treat certain types of anemia (lack of red blood cells). It is sometimes used in combination with other medications to treat pernicious anemia.
Vitamin B12 Cobalamin It is important for the normal formation of red blood cells and for the health of the nerve tissues. Undetected and untreated deficiency can lead to anemia and permanent nerve and brain damage.
Vitamin C Ascorbic Acid Is a water-soluble vitamin that must be obtained from the diet or supplements. It has been linked to many impressive health benefits, such as boosting antioxidant levels, lowering blood pressure, reducing the threat of heart disease risk, guards against gout, improves iron absorption, boosts immunity and reduces dementia risk.
Vitamin D Helps your body absorb and regulate calcium and phosphorus. You can get it in three ways: through your skin, from your diet, and from supplements. It also plays an important role in maintaining proper bone structure.
Vitamin E Is a fat-soluble nutrient found in many foods. In the body, it acts as an antioxidant, helping to protect cells from the damage caused by free radicals. Free radicals are compounds formed when our bodies convert the food we eat into energy
Vitamin K Is used by the body to help blood clot.

You will see these listed on many food item labels or on the content labels of the ubiquitous multivitamins seen everywhere. There is little to no governmental quality control. Snake Oil anyone!

Minerals Join the Ranks

14 Essential Minerals are now known to be needed in greater quantities than what is normally available from our food : Choline, Calcium, Chromium, Chloride, Phosphorus, Iron, Magnesium, Copper, Molbydeum, Potassium, Selenium, Zinc, Manganese, and Iodine.

More than 90 percent of Americans fall short on at least one essential vitamin or mineral.

There must be an easier, more palatable way to get these nutrients into our diets.

Ah Yes, Handy Dandy Kitchen Appliances to the Rescue!

Blenders and juicers are two great ways to extract nutrients from our fruits and vegetables. Blenders and juicers very different machines, with two quite different purposes. Yes, they both process tasty fruit and veggies into a delicious, nutritious drink but the way they do it, and the result, is not the same at all.

A juicer separates the fiber or pulp from the fruit or vegetables. This leaves only the juice for you to drink. The remaining fiber pulp is discarded. This means that you can pack more fruit or veggies in per cup and you get all your vitamins and nutrients in the most easily digestible form. This gives you a blast of nutrients but guess what, you’ll get hungry much faster! Scary when you are struggling with weight loss

A blender processes the whole fruit or vegetable, including the fiber. This makes a thicker drink (usually called a smoothie) which takes longer to digest. If you have not become a smoothie fan you will. You still get all the nutrients, but they are released more slowly. This satisfies your appetite and leaves you feeling more full  for a much longer time. Now you are talking!

Photo by David

The Hard Way to Get Your Nutrients

In the past, I have religiously taken both vitamin and mineral supplements since I played football in high school. Until just recently I was greeted with a barrage of supplement bottles every morning. Of course the best part is choking down all of these not to mention the time involved with this mess.

Photo by David

The Easy Way to Get Your Nutrients

This is my Nutribullet Balance, 1200 watt BLENDER. It is simply fabulous. Now I don’t know about you but this looks a lot more appealing than that huge stack of supplement bottles. I know it certainly tastes better.

I can even hide all manner of green stuff in here and the kids never know they are drinking spinach, broccoli, or kale.

Each item can be weighed and added to the total weight automatically as you add it to the cup. The Nutribullet Balance App gives you a list of items in the recipe stored on your phone. You add them into the cup and a colored band in the app displayed on my phone indicates when to add the next item.

Photo by David

I just doesn’t get any better.

I press down on the cup and in mere seconds of 1200 watt power and I have this treat. Nuts, seeds, fruit, vegetables all blended together in into this lovely creamy concoction that even my teenager loves. 

This is the only way to go. I also shop for NON-GMO fruits and vegetables and that way I am sure to get the nutrients we need, without the free pesticide.

I have found Amazon to have the lowest prices and a huge variety of the Nutribullet Blenders.

There are many juicers and blenders on the market so how to choose the right one for your needs?

With a little research you can easily find these items for sale. Just be careful to find one that is really going to do the job for you. I  buzzed through about 7 of these juicers and blenders before I found one I really liked. I mean REALLY LIKED!

I Got the Power 
Power is the most important feature for me. I am just a busy, impatient person. I haven’t got all day to wait for Mr. Winky Dinks itty bitty juicer or blender. I always want it done NOW.

This along with other things like being able to make hot soup (in another version of the Bullet)  or being able to automatically weigh the smoothie items and transmit the data to my phone via Bluetooth,  and of course the NutriBullet NAME BRAND. Let’s face it which would you prefer, the ¼ watt Mr.Itsy Bitsy or the 1200-watt, bone crushing power of the latest Nutribullet Balance? No question, right? You’re busy too!

Reliability

I have never had my new Nutribullet bog down, start to smoke from overwork, or just plain die on me. What I really like is that this model is the Bluetooth SMART technology enabled scale that will communicate with my phone as I drop the fruit and veggies into the 32-ounce cup and the scale weighs everything for me and transmits it to my phone. The free phone app can perform all sorts of wizardry. You will be the coolest nutrient nut on your street. 

This is no ordinary blender!

The NutriBullet Balance pairs with your smart phone, displaying nutritional content in real time as you’re building your smoothie blends or mixing great dishes for meals.

  • No more recipe books
  • No more measuring cups
  • No more guesswork
  • No more mess and Bullet cleanup takes seconds

When using the NutriBullet Balance you know exactly what’s in every smoothie you make!

Perfect for health requirements and special diets.

The Nutribullet Balance delivers an all-around top-quality delicious smoothie.

Please Tell Us Your Nutribullet Experience Below                              Good experience or great recipes with your Nutribullet. Only takes a minute and we would REALLY appreciate hearing from you. You can comment below.

Now that you are the most healthy person you know, find out just how SMART YOU ARE. What is WA?

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Review of Focus Video: Focus on our capabilities and not our disabilities.

REVIEW on Focus Video

Focus on our capabilities and not our disabilities. We are not handicapped, but handi-capable!

29 minutes  created 2012

Focus is a relatively short video that  expresses the feelings of most Special Needs People right from the title and subtitle . Directors Harold Sistrunk, Jr. and Judy Redlich are Special Needs People themselves so the interviews of other Special Needs People in this video take on a whole new sincerity as compared to something else that was done by a person or persons that are not disabled.

I was thoroughly happy to see all of the people in the video were in some kind of Special Needs situation rather than actors. Each and every person in this video displayed a level of courage and good old-fashioned stick-to-it attitudes. They factually show what can be done with a life even under extremely trying medical difficulties.

This should be required viewing for every young person in high school or college. My son, who is a victim of Spinal Muscle Atrophy was basically awe-struck by the accomplishments of these people. How absolutely inspiring and necessary viewing for every Special Needs Person.

Comments? We would love to have your take on this short yet super-inspiring video. All responses are very appreciated! Please find the comment window below.

THANK YOU!

You are too smart to pass up this much extra income. Answer this question: What is WA?

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Government Programs for the Disabled

 

Society Makes Room for People with Disabilities!

As we take a quick view into the world of the disabled and the issues they face I have provided many useful links to various assistance programs and sources of necessary equipment to help them advance and lastly, links into several sources of education and job training.

Please note that my focus here is not to “monetize” this site but to get these people with disabilities, our “Special Needs People” the help they need to break out of their circumstances and to become all that they were meant to be.

As you read through this please take a look at these links to the world that are here. The Solutions are well on their way. This is intended to help make the various resources known. 

Shout It Out

The Disability Rights Movement, that once silent group of people are getting more focused and noisy every day. We not only have the people with disabilities who have genetic disorders like Little David, but also folks who have had some kind of debilitating accident or illness. Wounded U.S. Veterans are unfortunately gaining more members daily. 

There are Disability Grants for all kinds of needs . No longer are the disabled left to fight for their rights all on their own.

Our Wounded Veterans

One group of people that is growing daily is the group of heroes we know as wounded warriors, the Purple Heart Recipients.  These young men and women have voluntarily given so much for our country. We must never forget the high price of freedom!

The Cost for Many is Dramatic

Even with great amputee services for our   wounded warriors, many of these young people over the last few years have been ignored by society. Fortunately the Amputee Services of the Veteran’s Administration is second to none with  superior medical services and state of the art prosthetics.

Depression & PTSD Treatment

It is shocking to hear that there are so many wounded who are overwhelmed with things like Depression or PTSD (Post Traumatic Stress Disorder)  because of extended exposure to the horrors of war. Even more distressing is  that they are killing themselves in droves every day just to escape the pain and mental anguish.

All Gave Some, Some Gave All

It is my feeling that we need to care for them in the same way that they so willingly sacrificed for us. I know that there are not only veteran’s facilities to help these wounded.

I think all disabled people, no matter what the reason is for their disability, should be made aware of the multitude of excellent programs offered by the U.S. Government. Their needs go far beyond what we ever imagined. Fortunately there are many benefits programs designed especially for them.

Financial Aid and Grants

Programs to provide the disabled with a huge array of financial benefits and services are now available. There are now grants for everything from college funds to starting a new business. There are job programs and social programs. Some programs provide homes or home loans for the disabled. Why there are even debt relief programs available.    

Specialized Equipment

Benefits cover almost all of the specialized equipment that would otherwise be out of financial reach for the majority of disabled people through numerous grants not only from the government but also the ever growing number of private institutions, all helping to make the impossible POSSIBLE.

Why even a meager power wheelchair can easily cost over thousands these days. The same goes for a vast array of other specialized equipment that helps families to carry on with hope and dignity.

 

This is the chair that Little David has and it cost around $15,000. Every feature is carefully chosen to best help the person and then custom built from the ground up.

The list below contains some of the most popular sports that disabled sportsmen and women are gravitating to: 
Rugby, motocross, basketball, tennis, softball, speed sailing, snow sports, and wheelchair racing.

Then we even have very specialized fitness and sports services for people with disabilities. This is wheelchair Rugby. Looks pretty intense to me.

There are also  programs especially for veterans with disabilities.

 

No More Dark Ages

No more dark ages for any of these people. They have become energized and uplifted by all of the goodwill along with their new found freedom and mobility. Some of the finest technological aids are now available and a multitude of grant programs.

Training Is The Solution, The Next Step To Freedom

No, it’s not enough. I am sure that not a single disabled person would rather have all of these benefits than to be whole and healthy. Still, we, through government programs are trying harder every day to help them get through this life. A life that most of us cannot even imagine. 

People with disabilities have won many rights and they are a Fierce Army to face. They will not accept anything less than success along with the freedom and independence it brings.

Now to make use of all of this, training, jobs, more education, and understanding is what they need now. This, I feel, is the final hurdle for most folks with disabilities. The step forward to blending invisibly as far into our worldwide societies as is possible.

More Details to Come

I have just touched ever so lightly on what the government provides for these unfortunate people who do not want our pity, just an equal chance. I do want to point out that the government is not the only source of help for the disabled. More and more companies, churches, and private organizations are giving aid and even providing jobs and education opportunities for the disabled.

 We will do our best to bring you up-to-date information about new benefits made available.  For a Wealth of Information on people with disabilities, visit Accessibility at the Library of Congress

If you have information you would like to get out please leave a comment below.

 

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The Ferocious Army of the Disabled – Legal Rights, Equal Rights for All

This is a fairly complete, alphabetically sorted list of organization that help the disabled fight for their rights.

Most are not disability ‘rights’ organizations. They are charities funded to provide services to help the disabled and do not engage in advocacy and are a-political.

Image result for American Disabled for Attendant Programs TodayAmerican Disabled for Attendant Programs Today – ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom.

American Association on Intellectual & Developmental Disabilities –  Is an American non-profit professional organization 

concerned with intellectual disability and related developmental disabilities. AAIDD has members in the United States and more than 50 other countries.

American Association of People with Disabilities –AAPD is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities.

American Coalition of Citizens with Disabilities – A national  ACCD               consumer-led disability rights organization.

American Council of the Blind – Strives to increase the independence, security, equality of opportunity, and quality of life for all blind and visually impaired people

American Diabetes Association – Mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes

AFB – Enables access, promote and deliver technological solutions, collaborate with the vision loss community, and provide resources that inform and enlight.

Association for Real Change – To improve the quality of life for people who have a learning disability by supporting anyone who is involved in the planning or delivery of support and services

The Arc of the United StatesPromotes and protects the human rights of people with intellectual and developmental disabilities while actively supporting their full inclusion and participation in the community throughout their lifetimes.


Aspies For Freedom – Is a solidarity and campaigning group that aimed at raising public awareness of the autism rights movement. The aim of Aspies For Freedom is to educate the public that the autism spectrum is not always a disability, and that there are advantages as well as disadvantages


Autism National Committee – Is an American advocacy association of autistic people and their allies


Autism Network International – An autistic-run self-help and advocacy organization for autistic people 


Autistic Self Advocacy Network – Public policy advocacy, the development of autistic cultural activities, and leadership trainings for autistic self-advocates  providing information about autism, disability rights, and systems change to the public


Burton Blatt Institute – An organization that aims to advance civic, economic, and social participation of persons with disabilities in a global society


Canadian National Institute for the Blind – Aims to create a world of no limits for people who are blind or visually impaired. We mobilize leaders, advance understanding, and champion impactful policies and practices using research and data


Catalan Association for the Blind and Visually Impaired – Goal is to offer services to blind and visually impaired people to help improve their quality of life and to accomplish a better integration of the collective


Community Alliance for the Ethical Treatment of Youth – An advocacy group for people enrolled in residential treatment programs for at-risk teenagers


Center for Independent Living – Provides tools, resources, and supports for integrating people with disabilities fully into their communities to promote equal opportunities, self-determination, and respect


Council of Parent Attorneys and Advocates – Protecting the Legal and Civil Rights of Students with Disabilities 



CureSMA – Provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA (Spinal Muscle Atrophy)


Dementia Society of America – To enhance the quality of life for those living with Dementia, caregivers, and the community


Disabled American Veterans –  Empowering veterans to lead high-quality lives with respect and dignity.


Disabled Children’s Computer Group –  Promotes new computer technology  DCCG to assist children and adults with disabilities to speak, write, read, learn, and participate in a larger world


Disabled in Action – Organization committed to ending discrimination against people with disabilities


Disabled Peoples’ International – Human rights organization committed to the protection of the rights of people with disabilities and the promotion of their full and equal participation in society


Disabled People’s Organizations Australia – Promotes and advances the human rights and freedoms of all people with disability in Australia


Disabled Women’s Network Canada – National organization working to eliminate poverty, discrimination and violence against women with disabilities and Deaf women


Disability Rights Commission –An independent body established to stop discrimination and promote equality of opportunity for disabled people


Disability Rights Education & Defense Fund – Leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities


Enabling Unit – University College of Medical Sciences – Ensures affirmative action’s concerning persons with disabilities including students, nonteaching staff, faculty as well as patients at UCMS


Easter Seals – Helps people with disabilities, veterans & seniors live, learn, work and play.  Autism Services. Day Care. Accessibility Resources


Equal Employment Opportunity Commission – A federal agency that administers and enforces civil rights laws against workplace discrimination


FAIDD(Finnish Association on Intellectual & Developmental Disabilities) – Promotes good life, equality and participation for people with intellectual disabilities and others who need support with learning, understanding  and communicating


Galloway’s Society for the Blind – Provides a range of services to over 7000 Blind and Partially Sighted people


Handicap International – Aims to help disabled and vulnerable people in situations of poverty and exclusion, conflict and disaster


IDIRIYA – A not-for-profit registered humanitarian organization focusing on disability rights that fully understands disability related access issues that affect a wide range of people in day-to-day life that concerns even their safety and physical, mental, economical and social well being


Infinite Ability – University College of Medical Sciences – A special interest group on disability within the Medical Humanities Group of the University College of Medical Sciences 


International Disability and Development Consortium (IDDC) – Aims promote inclusive development. Inclusive development means respecting the full human rights of every person, acknowledging diversity, eradicating poverty and ensuring that all people are fully included and can actively participate in development processes and activities regardless of age, gender, disability, state of health, ethnic origin or any other characteristic


International Blind Sports Federation – Is in charge of a wide range of sports for athletes who are blind or partially sighted


International Ventilator Users Network –Mission is to enhance the lives and independence of home ventilator users and polio survivors through education, advocacy, research and networking


Landmine Survivors Network –Empowers individuals, families and communities affected by landmines to recover from trauma, reclaim their lives, and fulfill their rights


Latvian Association for Support of Disabled People –Supports the rights and interests of Latvian people with disabilities, provides transportation and other services, including education and employment consulting


L’Arche – Supports communities, through leadership structures, training, administrative or financial assistance depending on the local needs. Through meetings and other means the Federation facilitates the sharing of experiences and resources.


Learning Disabilities Association –Supports people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources


Little People of America –Provides support and information to people of short stature and their families


Mencap – A UK charity for people with a learning disability


Mental Disability Advocacy Center – The only charity using the law to advance the rights of people with mental health issues and intellectual disabilities worldwide


Mental Disability Rights International –  A nonprofit organization that unites 100 sponsor and affiliate grassroots groups with thousands of individual members to win human rights and alternatives for people labeled with psychiatric disabilities


Mind – Provides advice and support to empower anyone experiencing a mental health problem as well as campaigning to improve services, raise awareness, and to promote understanding


MindFreedom International – A nonprofit organization that unites 100 sponsor and affiliate grassroots groups with thousands of individual members to win human rights and alternatives for people labeled with psychiatric disabilities


Movement for the Intellectually Disabled of Singapore – One of the oldest and largest non-governmental organizations catering to the needs of persons with intellectual disability (PWIDs) in Singapore


MDA is leading the fight to free individuals and the families who love them from the harm of muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength, independence and life


Shapes national public policy for people with mental illness and their families and provides volunteer leaders with the tools, resources and skills necessary to save mental health in all states


National Association of the DeafThe nation’s premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America


The UK’s leading charity for autistic people and their families to help transform lives, change attitudes and create a society that works for autistic people


National Council on Disability – If you have a disability, learn how government programs and services can help you with daily life


 

National Down Syndrome Congress –  Is dedicated to an improved world for individuals with down syndrome


National Federation of the Blind –Believes in the full capacity of blind people, and has the power, influence, diversity, and determination to help transform our dreams into reality


National Spinal Cord Injury Association – Its mission is to provide active-lifestyle information, peer support and advocacy that empowers people living with spinal cord injuries and disorders to achieve their highest potential


Northern Ireland Deaf Youth Association –  The leading deaf youth charity in Northern Ireland, working to meet the current needs of deaf children and young people


Not Dead Yet –A national, grassroots disability rights group that opposes legalization of assisted suicide and euthanasia as deadly forms of discrimination


Paraplegic Center Peshawar – Physical, Occupational, Vocational and Psychosocial Rehabilitation, Community Re-integration, Wheel Chair accessibility  and minor home modifications, Participation in Sports /Games & Re-creational activities, Job Placement & Socio-economic support, of people with spinal cord injuries.


People with Disability Australia –A national disability rights, advocacy and representative organization that is made up of, led and governed by people with disability


Post-Polio Health International –Mission is to enhance the lives and independence of polio survivors and home ventilator users through Education, Advocacy, Research and Networking


The Royal Association for Disability Rights –An umbrella organization which works with and for disabled people to remove structural, economic and attitudinal barriers


The Royal National Institute of Blind People – Offers help and support for blind and partially sighted people. This can be anything from practical and emotional support, campaigning for change, reading services and products


The Royal National Institute for Deaf people – The largest charity working to change the world for the UK’s nine million deaf and hard-of-hearing people


Rehabilitation International –  Is a network of organizations and individuals whose aim is to implement and improve disability rights worldwide


Spastic Society of Gurgaon –Provides care and services for Cerebral Palsy in Gurgaon


Special Olympics – Their mission is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities


The mission of TASH to eliminate physical  and social obstacles that prevent equity, diversity and quality of life for children and adults with disabilities


Tourette Association of America –The premier national non-profit organization working to make life better for all people affected by Tourette and Tic Disorders


United Cerebral Palsy –Promotes the independence, productivity, and full citizenship of people with cerebral palsy, intellectual, and developmental disabilities, and other conditions through an affiliate network.


United Spinal Association –A nonprofit membership organization dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals


Women With Disabilities Australia –  Is a national voice for the needs and rights of women with disabilities and a national force to improve the lives and life chances of women with disabilities.


 

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United States Social Security Disabililty Income Benefits Information

Related imageThere is a wide range of Social Security Disability Income Benefits available through the Security Administration . Of course there are certain qualifications that must be met before someone is able to get paid. Click Here to view the booklet prepared by the Social Security Administration to clarify the rules and give you direction.

If you don’t find what you need please leave us a comment below and we will try to find it for you.

 

 

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Special Needs People Discussion and Comments from Everyone

Special Needs People Discussion and Comments

So here we are, trying to gather up some steam to make this more than just a passing thought. I has always been my attempt here to not only do some quick education on this subject of Special Needs People, but to engage readers, both of normal and disabled status to get involved in thought provoking discussions that may help everyone to better understand the situations and needs of the disabled. I want your inputs as to what you would like to see changed to make life and interactions better and more healthy for all of us. 

Looks like a good burger

He prays for you!

As a step-father to a wonderful young man, named Little David, I have learned a lot about needs of the disabled and how to best help but I have also learned that I only see the tip of the iceberg. There is a lot more to be learned both by the non-disabled as well as the disabled. 

I know that this audience is made up of people from both groups. I also know that there are subjects that need to be addressed. As always, these are most effectively discussed as a team. I personally think that will be good for all and that we may be able to get some real improvements made.

I would like to invite you all to give this some thought and to make comments and/or suggestions here on this page. I am hoping that with your help, we can open both the eyes blind to the needs of these special people and that we can create an environment of mutual learning for everyone’s benefit.

Please join us won’t you! Comment section is just below.

THANK YOU!

Big David

Viva WA

 

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